While this information is great, there is still not enough known about Behcet’s and its causes…
A disease forecast report for Behcet’s Disease was recently released by Research & Markets and further publicized via Business Wire. It is available for purchase (we shake our heads) and outlines the prevalence of Bechet’s across 12 major countries (USA, France, Germany, Italy, Spain, UK, Japan, Sweden, Turkey, China, Saudi Arabia and Egypt) thanks to the proprietary Epiomic patient segmentation and associated database.
The report is broken down by gender, grouped into 5 years age segments and delves into geographical and ethnical variations. It contains a generic disease overview of Behcet alias’ like Silk Road Disease and Adamantiades-Behçet’s Disease, its classification as a vasculitides disorder of autoimmune, and lists risk factors, diagnoses and prognoses.
Click here to read 8 Behcet’s Disease Facts You Need to Know
So, when I saw this report announcement I got fired up!
I wanted to write an article about Behcet’s and I had already started to write about this report when to my dismay, I realized it had to be bought. I did a quick google search to see if I could find any more recent Behcet’s information that I didn’t have to purchase. I couldn’t! There is so much we don’t know about Behcet’s Disease – and when I say we, I really mean medical professionals.
Not too long ago, I was sitting in the doctors office showing off these really weird skin lesions on my legs. They were painful, but I just chalked it up to in-grown hairs. He told me I had MRSA, then put me on antibiotics which I took for well over 6 months.
Guess what? it wasn’t MRSA! Went to a dermatologist and she said looks like erythema nodosum – you probably got a pedicure at an unsterile salon and picked up some bacteria. A few rounds of this medicine should clear it up. Well it didn’t.
And so was detroyed my dream of becoming a leg model. I am totally kidding, I am 5’1″… I never stood (haha) a chance.
But I got so frustrated, I stopped asking questions and I stopped making appointments. I just ignored it.
Today, years later, after seeing multiple specialists- each with a different story and idea, I am being tested for biomarkers indicating Behcet’s Disease. I do not have an official diagnosis and for now will spare you my rant about my genetics, basic defects and clinical features that present. By no means is the above paragraph an implication alone that you may have Behcet’s Disease. Remember, Behchet’s is a rare disorder. I could probably give you better prevalence numbers in the US if I purchased that damn report. But the recorded and known instances are very low, especially because symptoms vary so much.
