Imagine having a student in class that looks… a bit like this on a regular basis.
Dysautonomia is an umbrella medical term utilized for a group of complex conditions that are caused by a dysfunction of the autonomic nervous system (ANS). The ANS regulates all of the unconscious functions of the body, including the cardiovascular system, gastrointestinal system, metabolic system, and endocrine system. A dysfunction of the ANS can cause debilitating symptoms and may pose significant challenges for effective medical treatment.
Orthostatic intolerance (the inability to remain upright) is a hallmark of the various forms of dysautonomia.
Eric lives with the symptoms of dysautonomia. In his case, his family made the decision to homeschool him starting in elementary school. Fast forward a bit to today: Eric is an extroverted 18 year old. Thanks to the collaboration of his parents, teachers and school district, he is now able to attend classes via robotic device. Think about what a difference that makes. Eric is no longer limited to home schooling, can interact with his classmates, and make connections – which is essential to being human.
He’s the cool kid who is instantly recognizable thanks to his rather unique robotic appearance. He might accidentally bump into you in the hallway and – instead of getting you mad – become your new friend.
According to Dysautonomia Youth Network of America, common sense lifestyle adjustments are a critical factor both in the initial and long-term healing process and in the maintenance of optimal health and daily function. Eric had been strictly homeschooled for many years in order to meet his needs. But homeschooling comes with its own set of challenges, such as limiting the amount of people you get to see on a daily basis. Kudos to Eric and his support network for thinking outside of the box and opening up new avenues of learning! So many more people are now aware of what an incredible guy Eric is growing into and at the same time Eric is spreading awareness about dysautonomia.
