Moving up the ranks in a disease state profile may be difficult, but not impossible. There are tried and tested ways to heighten awareness and get the dystonia message out to a broader base of people.
Dystonia is the third most common movement disorder after essential tremor and Parkinson’s disease.
And if you’re here, you care and want to change this reality for those who suffer with it. Just like the folks at The Dystonia Society, a support group based in London, United Kingdom.
Offering a wealth of resources – do any of these topics interest you? Click away.
So, let’s talk GREEN.
Don’t underestimate the power of color association. Think green. Wear it. Paint it. Decorate with it. Rock the face paint and own it. Teach others to associate GREEN with dystonia.
Crowdfunding
More people are turning to crowdfunding for things you might not consider emergencies, like travel, tuition, art projects. So why not disease research? The Dystonia Society uses Thunderclap, but there are other effective options:
- Kickstarter
- Indiegogo
- RocketHub
- GoFundMe
- Razoo
- Crowdrise
Go Traditional with a Twist
Homemade Pinterest-crafty posters are cost effective. So are the likes of a bake sale. You can even go with the newest trend of the non-bake sale. Just skip the baking and go right for the support funds and donations.
Whichever the direction of your efforts, emulate the words of Ron Kaufman, “Unlimited efforts can produce unlimited results.”
