You know what’s awesome? Blogs.
They’re a great medium for people to:
- get out their thoughts in writing
- educate the public
- teach something about which they’re passionate
- rant about politics (although, my roommate says I really shouldn’t do that)
- …really, ANYTHING
Since writing for Patient Worthy, I’ve come across a lot of blogs written by people living with a chronic disease or caring for someone who has a chronic disease.
LOTS of moms, I’ve noticed, keep up with blogs… like this one, called Get Well Clark.
The posts are written by the parents of a little boy named Clark, who is living with mild hemophilia, Dyskeratosis Congenita, and aplastic anemia—all of which are rare.
I mean, what are the chances? But I guess everything happens for a reason?
Clark’s parents hope the site will help spread awareness about his rare disease and keep their family members informed, for instance, about the stem cell transplant he had that cured him of his aplastic anemia.
And if cute kids tug at your heart strings, then prepare for an overload of cuteness! Clark is incredibly adorable.
You can’t help but wanna pitch in and help the little guy. In fact, his parents have provided resources and links inside the blog so you can do just that.
So, if you’re looking for help, information about aplastic anemia, or just need some inspiration, check out Clark’s blog.
Not only does he have experience living with three–count ’em, THREE–rare diseases, he’s fighting them like a champ, which stands as a testament to how great his family is!
