I want you to think about spinal muscular atrophy (SMA), a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Then, think about the word: DIGNITY.
Dignity in the sense as detailed by this quote:
Work is about more than making a living, as vital as that is. It’s fundamental to human dignity, to our sense of self-worth as useful, independent, free people. -William J. Clinton
Intrigued by my request yet?
Well, I give you the punchline.
The punchline is… Lyza Weisman.
However, don’t get me wrong. She’s no joke.
The reality is that the wheelchair-bound Skyline High School freshman, 14, needs help in the bathroom and in the shower due to spinal muscular atrophy.
BUT (there’s always a but)…
Lyza emulates all there is to be through dignity. Although she has support from her family, friends, and her service puppers, Lyza refuses to make excuses and protects her limited independence. She does “the work” and relies on ingenuity, wit, and will to do for herself.
Her inspiring story details just how kick-ass this teen can be as Lyza advocates for herself against a school district whose goal is to be… helpful. Yes, you read that right.
The school officials are trying to be supportive and install accommodations to simplify Lyza’s school day. But, the feisty teen has more to say about the topic. Click here for your daily dose of spinal muscular atrophy inspiration.
