The Hemophilia Alliance of Maine recently co-sponsored a special event with Shire Pharmaceuticals for grandparents to join together for inspiration.
The event was held on April 22nd in Maine.
I don’t know how many people attended the function, but that doesn’t matter. What matters is that grandparents are out there inspiring their grandkids who have hemophilia. Grandparents often cite their grandchildren as their inspirations, so this twist is incredibly heartwarming.
Naturally, some grandparents would also be talking about their own personal stories, their struggles, their tragedies, and their triumphs in living with hemophilia. Thanks to the advances in modern science and medical technology, people are not only living longer, they’re living healthier, more meaningful lives because of treatment.
They’re also living better because they’re learning, or have learned, to manage their hemophilia. Not just with drugs, either, but rather through lifestyle. It’s amazing—and more power to Shire for sponsoring this event!
Not long ago, I had the pleasure of talking with a guy in his mid-60s, who is living with hemophilia. He had a really rough childhood but eventually got the medical care he needed.
Finally, he was able to accept his condition and learned to take care of himself and infuse independently.
This made a big difference for him. As he was looking back over his life, he told me that he’s probably most proud of what he is accomplishing now: being a hemophilia camp counselor! He loves his “littles” as he affectionately calls the young boys of various ages who bravely come to experience this special camp.
This made a big difference for him. As he was looking back over his life, he told me that he’s probably most proud of what he is accomplishing now: being a hemophilia camp counselor! He loves his “littles” as he affectionately calls the young boys of various ages who bravely come to experience this special camp.
More power to anyone—especially to grandparents—who come together to share stories and experiences to help others. This is so important. We need more of it.
Give us a shout out if you attended this special event! We’d love to hear about how it went!
