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Batten Disease Support & Research Association (BDSRA) 2017 Family Conference

Name: Batten Disease Support & Research Association (BDSRA) 2017 Family Conference
Start: 2017-07-06T00:00:00-04:00
End: 2017-07-09T23:59:59-04:00
Location: The Wyndham Grand Pittsburgh Downtown

July 6, 2017 - July 9, 2017

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Details

Start:: July 6, 2017
End:: July 9, 2017
Event Category:: Batten Disease
Event Tags:: Batten Disease, Batten Disease Research &Support Association, Event, Lysosomal Disease Network, rare disease
Website:: http://bdsra.org/bdsra-conference/

Organizers

: Lysosomal Disease Network
: Batten Disease Support & Research Association

Venue

The Wyndham Grand Pittsburgh Downtown; 600 Commonwealth Place
Pittsburgh, PA 15222 United States + Google Map
Phone:: 4123914600
Website:: http://www.wyndhamgrandpittsburgh.com

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Batten Disease Support & Research Association (BDSRA) 2017 Family Conference

July 6, 2017 - July 9, 2017

Details

Organizers

Venue

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