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May 2024
The MDS Foundation’s Move for MDS Community Walk: Nashville, TN
Move for MDS Walk May 5, 2024 Nashville, TN Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the Myelodysplastic Syndromes Foundation in our fight against MDS. 100% of every $1 donated goes towards increasing awareness and accelerating critical research. A friendly 5K for everybody! Run, walk, wheel, or any movement you prefer JOIN THE MOVEMENT! Register Walk your 5k (3.1 miles) Celebrate your success! Use our fundraising &…
Find out more »The MDS Foundation’s MDS Patient and Family Forum
MDS Patient & Family Forum May 11, 2024 St. Louis, MO Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies…
Find out more »A Breath of Hope Foundation for NMO’s Women’s Wellness Tea
Women's Wellness Tea May 11, 2024 Golden Valley Country Club The Women’s Wellness Tea is an educational, social (and very fun!) event that celebrates women while exploring habits that lead to healthy, happy lives. Event Itinerary 10 am: Check-in | Silent Auction | Cash Bar 11 am – 12:15 pm: Brunch | Keynote | Hat Contest 12:30 – 1:30 pm: Breakout Sessions 1:30 – 2 pm: Social/Networking | Check-out
Find out more »CureDuchenne’s FUTURES National Conference
FUTURES National Conference May 23-26, 2024 Orlando, FL The CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to the entire Duchenne community. Get ready to transform the future of Duchenne research and, hold on tight, because we'll also be busting some serious dance moves together! Patient registration is totally FREE. To sign up, click here.
Find out more »June 2024
The FSHD Society’s 2024 FSHD Patient Connect Conference
$225
The 2024 FSHD Patient Connect Conference June 15-16, 2024 Denver, CO The FSHD Connect 2024 will be hosted on June 15-16 in Denver, Colorado. Held every two years, it is the world's biggest networking event for FSHD, bringing together hundreds of individuals and families living with FSH muscular dystrophy, clinicians, and researchers for two days of immersive learning and workshops. Attendees find out about the latest research, drug developments, and clinical trials, as well as a wealth of news you can…
Find out more »HCU Network America’s Moving Mountains HCU Conference
Moving Mountains HCU Conference 2024 June 29-30, 2024 Aurora, Colorado The HCU Network America’s 4th patient-expert conference will be held on June 29-30, 2024, in Aurora, CO. This is an opportunity for patients, parents, relatives, medical professionals, researchers, and industry reps to come together to move mountains for HCU. To register, click here.
Find out more »July 2024
Alport Syndrome Foundation’s Alport Connect 2024 In-Person Meeting
Alport Connect 2024 July 27-28, 2024 Denver, CO ASF’s patient and family meeting, Alport Connect, will return in 2024. The in-person event will be held in Denver, Colorado. Please check back for additional information as the event nears. We wanted to let our community know the dates and location as soon as possible so you can plan to join us in Colorado this summer! Additional details about this year’s event, including the venue, lodging options, and ticket reservations, will be…
Find out more »August 2024
The MDS Foundation’s Move for MDS Community Walk: Chicago, IL
Move for MDS Walk August 25, 2024 Chicago, IL Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the Myelodysplastic Syndromes Foundation in our fight against MDS. 100% of every $1 donated goes towards increasing awareness and accelerating critical research. A friendly 5K for everybody! Run, walk, wheel, or any movement you prefer JOIN THE MOVEMENT! Register Walk your 5k (3.1 miles) Celebrate your success! Use our fundraising &…
Find out more »September 2024
The MDS Foundation’s Move for MDS Community Walk: New York, NY
Move for MDS Walk September 22, 2024 New York, NY Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the Myelodysplastic Syndromes Foundation in our fight against MDS. 100% of every $1 donated goes towards increasing awareness and accelerating critical research. A friendly 5K for everybody! Run, walk, wheel, or any movement you prefer JOIN THE MOVEMENT! Register Walk your 5k (3.1 miles) Celebrate your success! Use our fundraising…
Find out more »October 2024
The MDS Foundation’s Move for MDS Community Walk: Boston, MA
Move for MDS Walk October 20, 2024 Boston, MA Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the Myelodysplastic Syndromes Foundation in our fight against MDS. 100% of every $1 donated goes towards increasing awareness and accelerating critical research. A friendly 5K for everybody! Run, walk, wheel, or any movement you prefer JOIN THE MOVEMENT! Register Walk your 5k (3.1 miles) Celebrate your success! Use our fundraising &…
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