Tags Posts tagged with "Community Spotlight"

Community Spotlight

Fear of the unknown is a feeling we’ve all faced at some point. I liken it to standing at the edge of a cliff...

Devic's disease, also known as neuromyelitis optica (NMO), affects the spinal cord and the optic nerves. It is a relapsing-remitting disease, meaning its symptoms...

A rare, neurological disorder affected three women with the same career in Spokane, Washington over the last two years. All three were healthcare workers,...

Imagine what it would be like to feel weak every time a strong emotion took hold. Of course, we all know that feeling when our...

Iva Rauh is a Pemphigus Vulgaris patient and advocate living in Maryland. Originally from Eastern Europe where the gene for this disease is prevalent,...

If dance is the universal language, then what does NC State’s annual Dance Marathon have to say--especially to type 1 tyrosinemia (TYR)? A lot, it...

Chucky Bartolo of Lovin' Malta introduced Jake Vella to the world yesterday. Jake suffers from the rare disease ROHHAD. While he was a regular kid for the...

Irrelevant, insignificant, ignored, un-empowered, but worst of all INVISIBLE. Let me let you in on a big secret. Those of us who are fighting everyday...

Alicia Goss is a college student, and for a long time she didn't know she had a rare condition called Wilson disease. She just...

When Megan Howard looked down at her completed drawing, colorful lines intersecting to form odd shapes, she saw elements of “The Scream.” She thought...

One tie, two ties, red tie, blue tie... The list goes on and on for Doug Robins, a young Australian man who’s raising awareness for...

It’s a scene no one anticipates. The doctor walks into the room where you, and maybe a loved one, are sitting. Clipboard in hand, the...

Nikeh Gray has sickle cell anemia and has been in and out of the hospitals for years. Not only is she constantly managing her disease,...

A year ago, a WUSA9 News reporter named Nikki Burdine of Dumfries, Virginia shared her personal story with the world. She revealed that she has...

Being diagnosed with pulmonary hypertension (PH) may feel like life is being turned upside down. One woman is sharing her story to allow others...

If you lost a child to a rare disease and knew there was a 1 in 4 chance that it could happen again, would...

People who take initiative figure out how to do things on their own. And that’s exactly the case for Reva Dolobowsky and her current...

Lately, I've been learning a lot about mucopolysaccharidoses (MPS). MPS covers a lot of territory. It refers to when the body is missing a...

It’s probably symptomatic of our celebrity culture that many people tend to associate diseases not with symptoms, but with famous people. For example: Multiple...

It’s hard to imagine what it would be like to hear that there is something wrong with your unborn baby. For those of us...

In my humble opinion, running sucks. But running for a cause? That’s something I can get behind. Londoner Wayne Russell, donned his sneakers and ran...

Myelodysplastic syndromes refers to a group of bone marrow failure diseases. If you think of bone marrow as the body's blood cell and platelet factory, when...

As humanity collectively slinks into the cold, dark days of winter, we could all use something to warm us up… or at least bring...

It’s very possible that you have found yourself in a situation where you would have liked to improve somebody's mood, but you may not...

Have you ever heard the expression— “In for a dime, in for a dollar”? It basically means if a person commits to something, then he/she...