Tags Posts tagged with "Dysautonomia"

Dysautonomia

I felt the cold sweat racing down my back. I felt like I was drowning, but there was no water around. By this point...

Who doesn’t like a good comeback story? Especially when it's about POTS? There are far, far, far too many challenges in life that can make...

A quick search of the Internet will tell you that fatigue is a common symptom of almost every disease, disorder, and syndrome. There are other...

Anger. Who doesn’t get angry? From big to small stressors in life, there are far far far too many triggers to choose from that...

Have you ever been lonely in a crowd? Have you ever been perfectly content all alone? Me too. And although it’s a little crazy...

Happy Friday Patient Worthians! PW Contributor Tom Seaman talks about what it's like to overcome the mental toll of your rare disease diagnosis. Another PW Contributor...

Ever wonder what it’s like to be so sick and disabled that you can’t live a normal life but you aren’t sick or disabled...

The tick bit Margie when she was 10, marking the start of a battle with Lyme disease, a battle that continues to this day, into...

Have you ever felt woozy when you stood up? And maybe it was so bad you actually fainted. One possibility is you have a...

Welcome back to Editor's Choice! This week we have an interesting take on Parkinson's treatment. We also have an empowering article from one of PW's rare disease contributors. We...

After lobbying during Rare Disease Week on Capitol Hill a couple of weeks ago, I was convinced we were pretty successful with our congresspersons...

Irrelevant, insignificant, ignored, un-empowered, but worst of all INVISIBLE. Let me let you in on a big secret. Those of us who are fighting everyday...

Have you ever heard the expression— “In for a dime, in for a dollar”? It basically means if a person commits to something, then he/she...

Kathryn es una esposa y madre de dos niños increíbles. Ella vive con síndrome de fiebre periódica idiopática indiferenciada, urticaria inducida por el frío...

Got the post-Superbowl blues? Then check out these uplifting rare disease stories! One amazing young woman with cystic fibrosis got a sweet shout-out on Super...

Recently, my boyfriend and I were looking at places to go on vacation before he gets deployed. He wants to travel internationally because this...

Meet Emily Deaton, de 21 años, de Mechanicsville, Virginia. Al igual que muchas personas con enfermedades invisibles, el viaje de Emily a un diagnóstico...
editor's choice

Welcome back to Editor's Choice Patient Worthians! This week we have a story on some awesome rockers that are helping out the POTS community. We also...

Having dysautonomia is not just a challenge during the day at work, but also when it comes to exercising... which is of course a...

It has been said that there is strength in numbers, and we are much stronger together! That’s probably why I connected with Shira Strongin, a...

For those of us who suffer from depression, that mostly invisible mental illness that, at its worst, can render us incapable of getting out...

Have you ever wanted to just take a break from addressing your illness? Like, taking those medical binders and folders and just keeping them...

I wrote the following poem when I was completely broken due to chronic pain. It is unfathomable to so many doctors that someone in...

She stands there with opened eyes Forgotten memories, stolen by time At first she speaks softly, Her words never heard. Then she yells FIRMLY Still not one head turned. She...

If you are like me and have complete inability to regulate temperature, then you might be looking for some awesome accessories to make life...