As most readers of this site are probably aware, a “rare disease” is classified in the United States as one that affects fewer than 200,000 people. It’s estimated there are…
Antes de que me diagnosticaran oficialmente con el síndrome de taquicardia postural ortostática (POTS, por sus siglas en ingles), pensaba que los síntomas extraños eran una parte de mí ser.…
A consistent struggle shared by those living with chronic conditions is to what extent that condition defines their lives. It's an ongoing battle and the results are constantly fluctuating. At…
So for those of you out there living with a rare disease, I am sure that you are very well educated of all the government and non-government organizations that work…
It's a new year! You know what that means? TONS of people at the gym. Do you know what else that means? TONS of germs at the gym. When you're…
The Cystic Fibrosis Foundation is an incredible resource for anyone living with the condition. Recently, they put together advice to help those living with CF manage their treatment plans. Among the highlights: If…
Ser diagnosticado con una enfermedad neurológica crónica puede ser reivindicación después de años de incontables especialistas visitas, pruebas e investigaciones. Sin embargo, hay todavía un tipo de período de duelo…
Obtener un diagnóstico de cualquier tipo es aterrador. Conseguir un diagnóstico de una rara enfermedad autoinmune, que amenaza la vida que usted nunca ha oído hablar de es aterrador. Pero…
Newly diagnosed patients and those who have been living with their illness(es) for a long time cope with their situation in very different ways. Some like to read while others…
If you’ve been suffering from high cholesterol with dismally low-density lipoprotein (LDL) scores, here’s some breaking news that could save your life! The FDA has announced the approval of a…
Denim is a lot of things—it’s versatile, it’s comfortable, and with the right cut, it’s great for your butt. But is denim really life-changing? Thanks to Jeans for Genes Day,…
Ahh, the miracle of life. Though it’s a beautiful thing, pregnancy can become an increasingly painful thing for those with arthritis and related conditions. And although ankylosing spondylitis occurs mostly…
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