Tags Posts tagged with "rare mom"

rare mom

For a child without a rare disease, a mother is a lot of things: chef, financial adviser, maid etc. All moms deserve kudos for...

"There will be times when you feel like you've failed, but in the eyes, heart, and mind of your child you are supermom." -Stephanie Precourt Even when you feel like you could...

As a mom to a child with a rare disorder I face many challenges everyday. My son's disorder requires me to weigh everything he eats...

My journey with my 24 yr old daughter's illness began about two years ago. She was living away from home when her symptoms began....

When my daughter was born on August 8, 2012 I became a rare mom. I wouldn't know I was until 15 months later, but my little...

[youtube https://www.youtube.com/watch?v=rKXLbesAooQ] When you’re a rare mom your diagnosis isn’t always figured out and so in between trying to raise your children, you’re going to...

I am a rare mom. For those that don’t know what that means, rare moms are the silent heroes of the world parenting to...

I am the mom to a 12 year old with Albrights Hereditary Osteodystrophy, AHO. According to the Genetic and Rare Disease Center, GARD, AHO is...

[youtube https://www.youtube.com/watch?v=SwDM69qzo2o] So you just found out that you’re a rare disease girl, and by the way, you’re a rare mom too! So welcome to...

above image by Sandro Georgi Photography In honor of Mother's Day, Patient Worthy is featuring some of the Rare Moms in the community, those caring for...

God blessed my husband and me with two girls, seven and nine. They are my reasons for living and my reason for fighting cervical...