According to a story from express.co.uk, the COVID-19 pandemic was a shock to the world when it first struck over two years ago, and while we have a better understanding…
Jeremy Schreifels was just a young child when he was first diagnosed with Tourette syndrome, a nervous system disorder characterized by sudden, involuntary movements or vocalizations (“tics”). In Jeremy’s case,…
Mandy Maysey is a 49-year-old mum living in Australia with her three children, who are all coping with an unpredictable disorder. Tourette syndrome (TS) is a neurological disorder involving repetitive…
Tourette Syndrome affects one million Americans. 2022 is the Tourette Association of America's 50th Anniversary, and to celebrate, you can get involved in Tourette Syndrome Awareness Month from May 15th…
Do you love sports? How about fundraising for a good cause? Well, if you’re located in New Jersey, you may soon be able to take part in a fantastic fundraising…
By Lauren Thayer from In The Cloud Copy Tourette syndrome (TS) is a neurological disorder that is characterized by involuntary, repetitive movements and vocalizations. These movements and vocalizations are called…
By Natalie Homan from In The Cloud Copy Rochelle was a 28-year-old mom of two when she went to sleep one night feeling perfectly normal. A few hours later, she…
A clinical trial of Lu AG06466 for the treatment of Tourette syndrome ended in failure recently, as it did not meet its primary endpoints in comparison to a placebo. While…
Phase IIa of the clinical trial of Lu AG06466 has recently concluded. This drug is meant for the treatment of Tourette syndrome, but has not met the primary endpoints in…
Teva Pharmaceuticals recently finished two clinical trials of their Tourette syndrome treatment, deutetrabenazine. These two studies, titled ARTISTS 1 and ARTISTS 2, did not meet their primary endpoints, as they…
The annual Code Talker award was presented during an engaging ceremony at the National Society of Genetic Counselors’ annual conference. Every year, patients submit essays nominating their genetic counselors for…
By Caitlin Seida from In The Cloud Copy If you asked Sarah Baldwin, age 19 and a sophomore at Syracuse University, about the success of the comic book she helped…
Therapix Biosciences specializes in cannabinoid pharmaceuticals. Currently, they are working on developing a therapy called tetrahydrocannabinol or THX-110 as a treatment for Tourette syndrome (TS). Additionally, it is being developed…
As reported in 17 Magazine, at 17, Billie Eilish has rapidly become a huge celebrity with her life catapulted into the public eye. Part of being famous in 2019 means…
According to a story from Medgadget, a team of researchers associated with Yale University have discovered that the symptoms of Tourette's syndrome can be controlled through the use of functional…
.jpg)
China’s attempt to stem the tide of drug addiction through brain surgery has been problematic. Yet a recent article in the Himalayan Times reports that six of the eight…
According to a story from Medical Xpress, living with Tourette's syndrome can be a unique challenge, especially for women. The condition, which is characterized by repetitive involuntary movement or vocal…
Rare diseases such as Tourette's syndrome and cystic fibrosis can be, among all of the other challenges that come with their diagnosis, extremely isolating. A recent article on Psychology Today explains…
99% Invisible recently reported on the history of "Orphan Drugs." These drugs are an enormous source of income for pharmaceutical companies - but the explosion in their production is a…
According to a report by medicalexpress, recent research from a DNA sequencing study revealed new information about Tourette syndrome. Led by researchers at UC San Francisco, this study represents the…
According to Scientific American, medication has long been the primary mode of treatment for those with Tourette syndrome. While these medications are effective in controlling the disease, the drawbacks…
May 15 to June 15 is designated as Tourette Syndrome Awareness Month, a rare neurological disorder that causes involuntary movements or vocalizations known as tics. Examples of these tics include repetitive blinking, clearing…
According to a story from PR Newswire, the pharmaceutical company Therapix Biosciences recently announced the results of a Phase IIa study for its drug candidate THX-110. The therapy is indicated…
A new cannabis treatment is going into trial in Australia to treat patients with Tourette syndrome, reports The Courier Mail. This will be the first study in Australia to use…
Last year, then sixteen-year-old Joshua Martineau who has Kabuki syndrome and Tourette syndrome, had a challenging experience at his local Cineplex. According to ChCh, Joshua was excited to celebrate his birthday. He…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
