Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

    Safer, More Efficient CRISPR Tech Offers Possible Duchenne Muscular Dystrophy Treatment

    We've written about CRISPR technology before, and it's potential for treating sickle cell anemia. But in a latest study done at the University of California, Berkeley, sponsored by the NIH,…

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    Registration is Open for This International Lennox-Gastaut Syndrome Conference

    Pack your bags LGS Warriors, your conference is headed to Orlando, FL this November! The LGS Foundation is holding it's fifth International Family and Professional Conference to promote collaboration between LGS…

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    You Can Help Raise Money for Amyloidosis Research This October
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    You Can Help Raise Money for Amyloidosis Research This October

    PW Partner the Amyloidosis Foundation (AF) is hosting their annual amyloidosis research benefit and you won't want to miss it! The AF was founded by two amazing amyloidosis patients who strived…

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    Go to Italy in November for the 5th International Conference for Glycoprotein Storage Diseases
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    Go to Italy in November for the 5th International Conference for Glycoprotein Storage Diseases

    This year, The International Advocate for Glycoprotein Storage Diseases (ISMRD) has moved their International Conference from the US to Rome, Italy! The ISMRD is a non-profit who aims to be…

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    Are You Attending the Pulmonary Fibrosis Foundation Summit 2017 This November?
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    Are You Attending the Pulmonary Fibrosis Foundation Summit 2017 This November?

    The Pulmonary Fibrosis Foundation (PFF) is hosting their biennial summit this November! Pulmonary fibrosis covers 200 different conditions that include sarcoidosis, IPF, scleroderma and other rare diseases. The conditions are characterized by…

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    Members of the Medical Community NEED to Register for this November Cystic Fibrosis Conference

    The Cystic Fibrosis Foundation (CFF) is hosting the North American Cystic Fibrosis Conference (NACFC) in Indianapolis, Indiana. The CFF is an amazing non-profit that aims to cure cystic fibrosis while…

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    Why NCATS Director Christopher Austin, MD Might Be the Rare Disease Advocate’s New Best Friend

    Day two of Global Gene's 2017 Patient Advocacy Summit started out with a fire side chat with Christopher Austin, MD, the Director of the NIH's National Center for Advancing Translational…

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    German Scientists Find Possible Parkinson’s Treatment in Diabetes Drug
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    German Scientists Find Possible Parkinson’s Treatment in Diabetes Drug

    Parkinson’s disease is a degenerative movement disorder of the central nervous system that insidiously forms, even starting subtly with a single tremor, progressing into slurred speech, loss of balance, and…

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    Norway Researchers Find Potential New Treatment for Patients with Parkinson’s Risk

    Norway scientists Suchi Mittal, et al. have found compounds that reduce levels of a key gene that increases the risk of developing Parkinson's disease. Parkinson's disease is a degenerative central…

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