Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

    The International Waldenstrom’s Macroglobulinemia Foundation is Teaming up with CancerCare

    Patient Worthy Partner and rare cancer advocacy group The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is partnering with CancerCare to bring you an event on October 4th that you won't want…

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    This Critical Discovery Gets Us Closer the Cause and Treatment of ALS

    BIG NEWS in the ALS community this week. As reported by NewsWise, researchers at the Mayo Clinic and St. Judes Children's Research Hospital have discovered the dysfunctional cellular mechanism behind…

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    Register for this September International Congress of Inborn Errors of Metabolism Event TODAY!

    August 21st is the online registration deadline for this rare disease event! The site says the 15th and the 21st, so either way, you'll want to check out the details…

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    Editor’s Choice: Survivor Status and Orphan Status are Both Good Signs in the Rare Disease World

    Happy Friday! This week, we have a story that might break your heart about a woman who battled cystic fibrosis. But we also have a story that might inspire you about a…

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    Editor’s Choice: Treatments, Methods and Strategies in Coping with Rare Diseases

    Happy August Patient Worthy Peeps! This week, we have some awesome posts to keep you up-to-date on some of the latest rare disease developments. There's news on a hopeful possible…

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    Editor’s Choice: Exciting New Tools and Devices to Help Rare Disease

    Welcome Back to Editor's Choice! The end of the week is finally here, and we have some reading material for you. First, we have an awesome story of a CF…

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    Editor’s Choice: Rare Disease News on the Founder of the Ice Bucket Challenge & Senator John McCain
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    Editor’s Choice: Rare Disease News on the Founder of the Ice Bucket Challenge & Senator John McCain

    It's getting hot out there... So you may as well read some news while staying cool inside if you're in the US! This week we have news on Senator John…

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    Editor’s Choice: It’s Junvenile Arthritis Awareness Month!

    Happy Friday! How's the the sweltering heat treating you all (if you're on the east coast of the US, that is)? Hoping you are keeping cool! In the meantime, check out…

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    Editor’s Choice: When Being a Rare Disease Patient = Being a Fighter

    WHEW! That week was short, wasn't it? We hope you had an awesome Independence Day Weekend in the US, and Canada Day in our neighbors to the north. This week,…

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    Editor’s Choice: Orkambi Shouldn’t be a Pie in the Sky for UK Patients

    Happy Independence Day Weekend Everyone! We have the latest update on the UK cystic fibrosis fight for Orkambi. We also have a great contribution on the importance of taking care…

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    Editor’s Choice: Soo Many Promising Results, Advancements and Treatment Options for the Rare Disease World!

    TGIF Patient Worthians! This week we have promising results on promising results. First up is news on a Dravet syndrome treatment. Second is a Lupus Nephritis drug in the works! Third…

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    Editor’s Choice: Staying Strong, Fighting for Treatment, and Feeling Vulnerable- Just Another Day in the Life of Rare Patients

    Happy Father's Day Weekend Patient Worthians! This week we have an amazing essay written by CMT Warrior Sarah Magno regarding her personal experience overcoming rare disease obstacles. We also have some…

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    Rare Patient Spotlight: Young Woman Stays Strong in the Face of CMT
    Sarah M kayaking.

    Rare Patient Spotlight: Young Woman Stays Strong in the Face of CMT

    In collaboration with the Hereditary Neuropathy Foundation (HNF), Patient Worthy asked members of the Charcot-Marie Tooth (CMT) community to tell us their stories, in hopes of inspiring everyone in the rare community…

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    Editor’s Choice: Powerful Purple Crayons and Supermoms

    Welcome to Friday Patient Worthians! This week we have stories on cystinosis and super moms with sickle cell! Additionally, we have a patient story on dystonia and an upcoming event. Lastly, an…

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    Editor’s Choice: Donating, Battling and Healing in the Face of Rare Disease

    Welcome to Friday Patient Worthians! This week we have a PW Contribution on one woman's battle with Stiff Person's Syndrome. We also have a piece on using fear to serve you in…

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    Editor’s Choice: Rare Adolescence, Rare Parenting and Rare… CEOing

    Happy Memorial Day Weekend Patient Worthians! This week we have an inspiring interview with the CEO and Founder of the Hereditary Neuropathy Foundation. We also have a motivating story on a cheerleader battling Friedreich's…

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