In a study conducted by Ph.D Ludwine Messiaen, the professor of genetics at the University of Alabama at Birmingham, says that there has been progress made to help aid those…
Researchers from the University Hospital Bonn in Berlin, Germany have successfully used artificial intelligence image scanning to diagnose patients with Glycolipid (GPI) anchor deficiencies, reports Healthcare Analytics News. They recently published…
According to Timesunion, 10 patients in New York were diagnosed with the extremely rare eye cancer called vitreoretinal lymphoma. Since all of these diagnoses happened within four years of patients…
Idiopathic thromocytopenic purpura (ITP) is a rare bleeding disease that affects about 3 in 100,000 people in the US-- or, at least, that's how many people are diagnosed-- according to SELF.…
A new study conducted by Centers for Disease Control and Prevention found that premature babies were more susceptible to having obstructive sleep apnea (OSA), reported RadioAllen. About 1 in 10 newborns…
Henry Ford West Bloomfield Hospital is all about their furry friends, AKA their beloved canines, reports Detroit News. If you aren't greeted instantly by Hope and Benson, two of the…
3D printing has officially hit the medical field and it's already making noise, reports The Jerusalem Post. Recently, 3D printing was used in Israel for orthopedic surgery and found great success.…
A new study looks at the impact of a drug to treat multiple sclerosis (MS) on children of patients who take it during pregnancy, reports News Wise. Some MS patients take…
Studies show that if your father's mother, your paternal grandmother, was diagnosed with ovarian cancer, you are at a higher risk for the disease than if your grandmother on your…
Precision medicine, also known as personalized medication, is now surfacing more than ever, but could not have happened without the years of research and billions of dollars in funding to…
According to NBC Right Now, the liver disease advocacy organization called The American Liver Foundation is launching an online platform designed to pair liver disease patients to clinical trials. The website,…
While learning about cancer at a molecular level while being a medical student, Omar Salman from Virginia Tech Carillon School of Medicine learned much more firsthand when he was diagnosed…
Donna Keck has multiple sclerosis (MS). She's 61-years-old and has lived a life full of health complications, reports Chicago Tribune. Nevertheless, Keck battled through these challenges and eventually founded a grounded…
A new study conducted at Binghamton University demonstrated that pancreatic cancer cells can be killed with a dual thermal ablation process, which is the combination of freezing and heating, reports…
The disease may be daunting, but it won't stop young, determined woman Ellis Kerton. According to LincolnshireLive, Ellis learned when she was 19-years-old that she was positive for Huntington's disease.…
You wouldn't know by looking at 5-year-old Grayson Ledbetter that he only had a few years of life left to live. According to The Washington Post, Grayson battles the rare,…
Erin Gard and her mother, Joanne Guthrie-Gard, already spent many years of their lives searching for an effective epilepsy medication for Erin. However, once they found it, they lost access…
According to the New York Post, 16-year-old Brandon Marshall from the UK stands tall at a whopping 7' 4", possibly making him the tallest teen currently in the world. His…
Anna Bridgeman, mother from Redbank Plains, luckily avoided death despite experiencing incredibly low kidney function, reported The Queensland Times. Anna had gone through much of her life without any serious…
Vanderbilt University Medical Center researchers have discovered a new method of searching existing electronic medical records to help identify genetic diseases in larger populations, reported EurekAlert!. Many people who may…
When Mac Grieb was just a one-year-old he already had two open heart surgeries and doctors said that he would need another in his teenage years, reports The Inquirer. Last…
According to a story from People, parents Lester and Noreen Jessop from Utah recently discovered that all three of their children have a rare, life-threatening disease called pantothenate kinase-associated neurodegeneration. Their firstborn…
26-year-old Rebecca Smith's pregnancy was going as smooth as can be until she was 8-months pregnant, reported Hertfordshire Mercury. Rebecca discovered a lump on her neck and went in for…
Just recently, MMJ International Holdings announced that MMJ Bioscience has received proper Canadian licensing to grow cannabis specifically to develop cannabinoid medicines to treat patients battling multiple sclerosis and Huntington's…
Losing a child has to be one of the most heart-wrenching experiences a family can encounter, yet losing a child when it could have been prevented is even more devastating.…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
