My Life with Rare Chronic Illnesses
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My Life with Rare Chronic Illnesses

Hello, my name is Megan. I have been diagnosed with postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS), mast cell activation syndrome (MCAS), small fiber neuropathy (SFN), eosinophilic esophagitis (EOE),…

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Research On COVID-19 Could Help Chronic Fatigue Syndrome Patients
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Research On COVID-19 Could Help Chronic Fatigue Syndrome Patients

We know that COVID-19 leaves some with long-lasting symptoms. In fact, we are beginning to discover the connection between the respiratory virus and chronic fatigue syndrome (CFS). Now, CFS patients…

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COVID-19 Long Haulers are Now Being Diagnosed With Conditions like POTS and CFS

It's no secret that COVID-19 can cause lingering symptoms, some of which persist for months. In fact, there is a name for those who deal with the lasting symptoms of…

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No Link Between Human Papillomavirus Vaccine and Autonomic Dysfunction Syndromes
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No Link Between Human Papillomavirus Vaccine and Autonomic Dysfunction Syndromes

by Lauren Taylor from In The Cloud Copy The human papillomavirus (HPV) vaccine has been being administered to teens and young adults worldwide for over a decade now. It has…

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The ADA is 30 Years Old. What Does it Mean to Young People with Disabilities?
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The ADA is 30 Years Old. What Does it Mean to Young People with Disabilities?

According to a story from Youth Today, the Americans with Disabilities Act (ADA) was first passed 30 years ago, in 1990. This historic law helps protect people that live with…

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Ankylosing Spondylitis has Taken Her Mobility, and She Fears Her Daughter is Next
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Ankylosing Spondylitis has Taken Her Mobility, and She Fears Her Daughter is Next

For Emma, the worst part of receiving her diagnosis with ankylosing spondylitis wasn't adapting to the constant pain, losing her breath over five minutes of standing, being too exhausted to…

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Is There Enough Education on Ehlers-Danlos Syndrome?
Hypermobility is not just a parlor-trick. For people with EDS

Is There Enough Education on Ehlers-Danlos Syndrome?

In Prohealth, Marlane Quade Cook draws on her own experience with Ehlers-Danlos syndrome to question whether the medical community has enough information and education to properly diagnose all 13 subtypes…

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Postural Orthostatic Tachycardia Syndrome (POTS): An Underdiagnosed Condition That Doctors Said Was All in Her Head

About one to three million people in the United States are living with postural orthostatic tachycardia syndrome (POTS). The disease affects one in one hundred teens and is more common…

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