Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…
Patient Worthy is expanding its platform for sharing patient stories through the production of short-form videos featuring rare disease patients. Recently, we sat down with Margaret, who lives with metastatic…
Written by Libby Wilson- Mommy, Living with Stage IV Breast Cancer Dear Violet - Before I met you, I never loved someone with every morsel of my being. I never…
Written by Libby Wilson, living with metastatic breast cancer Once there was a girl who met a boy. The girl chased the boy until he agreed to be her boyfriend.…
In 2018, Libby Porter welcomed her first child into the world. Her family was thrilled, especially her father John, who was so excited to have a granddaughter. But things…
Before you read on, don't forget to take a look at Part 1 of our interview. In Part 1, Savanah discussed what metastatic breast cancer (MBC) is, her diagnostic journey, and treatment…
October is Breast Cancer Awareness Month. This month is dedicated to raising awareness about the impact of breast cancer, raising funds for research, supporting those with breast cancer, and advocating…
A recent study has evaluated the incidence of thromboembolic events (TEE) in patients diagnosed with advanced HR-positive, HER2-negative breast cancer. Specifically, researchers were concerned that treatment with cyclin dependent kinase…
Novartis has recently announced the results of their Phase II BYLieve trial, which is investigating Piqray® (alpelisib) as a treatment for hormone-receptor positive, human epidermal growth factor receptor-2 negative (HR+/HER2-)…
For patients and families, finding a supportive community can be extremely helpful. These communities spur research, offer a sense of understanding, and build awareness. This is exactly what Susan G.…
A story recently published on the website of British YouTuber Myles Power covered the incredible, unlikely, and infuriating story of two of America's latest great snake oil salesmen - Ernst…
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Following a record number of approvals in 2018, the FDA has recently approved two new drugs with many more anticipated approvals later in the year. Trazimera to Treat Human Epidermal…
According to a story from philly.com, it was August 2018 when Lisa Semple of Cherry Hill was first diagnosed with breast cancer. Unfortunately, her breast cancer had reached stage four,…
According to a story from BBC, it is becoming increasingly clear that a lot of the common phrasing and language that we use to talk about cancer and cancer patients…
The State of Cancer in the United States A recent report posted by the American Cancer Society has indicated that cancer rates in the United States have been continuously falling over…
Patients as Partners When you're diagnosed with an illness such as metastatic breast cancer, pancreatic cancer, or another rare disease that has limited treatment options, it's very easy to lose…
According to a story from baledezi.wordpress.com, a recent study demonstrated that a chemotherapy agent that originates from a sea sponge was able to prolong the lives of women with metastatic…
According to UWHealth, the researchers at UW Carbone Cancer Center look behind the five-year survival rate for cancer and instead consult what they call their "core facility--Cancer Prevention and…
According to the Dover Post, there are a few crucial questions to ask your doctor upon being diagnosed with breast cancer. By asking these crucial questions, patients will be…
The Westmorland Gazette reports that a new drug called Perjeta, has been given the thumbs up to treat women with metastatic breast cancer in England. Metastatic breast cancer is when one's…
Just this last June, a new drug successfully used to treat metastatic breast cancer patients in England, has been denied for a third time by Scottish Medicines Consortium (SMC), as…
England’s National Health Service has just approved a new drug for the treatment of breast cancer. While the drug is most effective in specific cases, advocacy group Breast Cancer Now…
According to a story from Financial Buzz, the pharmaceutical company BriaCell announced some preliminary results for the ongoing clinical trials of its experimental treatment Bria-IMT. This treatment is an immunotherapy…
According to an article from businesswire.com, the pharmaceutical company Odonate Therapeutics announced the beginning of CONTESSA, a phase three study of the treatment tesetaxel and its function in patients with…
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