Are you a rare disease patient or advocate? We want to hear from you!

Email: Kathryn Devanny, Advocacy Relations Director

Do you have a rare disease and want to share your story?

Patient Worthy is looking for smart, passionate, patients/caregivers/support persons to author original content. We believe in empowerment through education, awareness and dialogue, and we need your help to keep the conversations going.

If this sounds like you, contact us at

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