{"id":153718,"date":"2019-09-26T11:47:07","date_gmt":"2019-09-26T15:47:07","guid":{"rendered":"https:\/\/patientworthy.wpengine.com\/?p=153718&preview=true&preview_id=153718"},"modified":"2019-09-26T11:47:07","modified_gmt":"2019-09-26T15:47:07","slug":"editors-choice-listening-rare-disease-2-2-2","status":"publish","type":"post","link":"https:\/\/patientworthy.com\/es\/2019\/09\/26\/editors-choice-listening-rare-disease-2-2-2\/","title":{"rendered":"Editor’s Choice: Rare Patient Innovation and Support"},"content":{"rendered":"

Happy Thursday everyone!<\/h2>\n

This week, we’re highlights two stories about patients taking action to solve problems in their life: one patient innovates to improve their care, and another starts a rare support group. We also have an article about increasing MS treatment prices, and news about research into the origins of Parkinson’s disease.<\/p>\n[one_half]\n

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Ulcerative Colitis Patient has Invented a New Device Which Could Improve Care for Many
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Who knows what patients need better than patients themselves?<\/p>\n[\/one_half_last]\n[one_half]\n

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Study Finds Prices for Multiple Sclerosis Drugs are Going Up: We Need to Do Better
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Not only is this prices increase a burden for patients, but it jeopardizes their access to necessary care.<\/p>\n[\/one_half_last]\n[one_half]\n

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After Facing Her Son\u2019s Diagnosis, This Mom Started a PFIC Support Organization
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When your child has a rare diagnosis, it may be hard to find other who can relate to your journey. This mother took matters into her own hands,<\/p>\n[\/one_half_last]\n[one_half]\n

<\/p>\n

 <\/p>\n[\/one_half]\n[one_half_last]\n

Some Researchers Believe Parkinson\u2019s Disease May Begin in the Gut<\/a><\/h2>\n

The gut impacts many functions of the body… and potentially plays a big role in Parkinson’s.<\/p>\n[one_half]\n

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We hope you enjoy this week’s\u00a0Editor’s Choice posts! Don’t forget to share!<\/h4>\n

Do you have a rare disease experience of your own? Share with us here.<\/a><\/h3>\n","protected":false},"excerpt":{"rendered":"

Happy Thursday everyone! This week, we’re highlights two stories about patients taking action to solve problems in their life: one patient innovates to improve their care, and another starts a rare support group. We also have an article about increasing MS treatment prices, and news about research into the origins of Parkinson’s disease. [one_half]   […]<\/p>\n","protected":false},"author":1,"featured_media":16907,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[12007],"tags":[252],"_links":{"self":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/posts\/153718"}],"collection":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/comments?post=153718"}],"version-history":[{"count":0,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/posts\/153718\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/media\/16907"}],"wp:attachment":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/media?parent=153718"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/categories?post=153718"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tags?post=153718"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}