{"id":153718,"date":"2019-09-26T11:47:07","date_gmt":"2019-09-26T15:47:07","guid":{"rendered":"https:\/\/patientworthy.wpengine.com\/?p=153718&preview=true&preview_id=153718"},"modified":"2019-09-26T11:47:07","modified_gmt":"2019-09-26T15:47:07","slug":"editors-choice-listening-rare-disease-2-2-2","status":"publish","type":"post","link":"https:\/\/patientworthy.com\/es\/2019\/09\/26\/editors-choice-listening-rare-disease-2-2-2\/","title":{"rendered":"Editor’s Choice: Rare Patient Innovation and Support"},"content":{"rendered":"

Happy Thursday everyone!<\/h2>\n

This week, we’re highlights two stories about patients taking action to solve problems in their life: one patient innovates to improve their care, and another starts a rare support group. We also have an article about increasing MS treatment prices, and news about research into the origins of Parkinson’s disease.<\/p>\n[one_half]\n

\"\"<\/p>\n

 <\/p>\n[\/one_half]\n[one_half_last]\n

Ulcerative Colitis Patient has Invented a New Device Which Could Improve Care for Many
\n<\/a><\/h2>\n

Who knows what patients need better than patients themselves?<\/p>\n[\/one_half_last]\n[one_half]\n

\"\"<\/p>\n

 <\/p>\n[\/one_half]\n[one_half_last]\n

Study Finds Prices for Multiple Sclerosis Drugs are Going Up: We Need to Do Better
\n<\/a><\/h2>\n

Not only is this prices increase a burden for patients, but it jeopardizes their access to necessary care.<\/p>\n[\/one_half_last]\n[one_half]\n

\"\"<\/p>\n

 <\/p>\n[\/one_half]\n[one_half_last]\n

After Facing Her Son\u2019s Diagnosis, This Mom Started a PFIC Support Organization
\n<\/a><\/h2>\n

When your child has a rare diagnosis, it may be hard to find other who can relate to your journey. This mother took matters into her own hands,<\/p>\n[\/one_half_last]\n[one_half]\n

<\/p>\n

 <\/p>\n[\/one_half]\n[one_half_last]\n

Some Researchers Believe Parkinson\u2019s Disease May Begin in the Gut<\/a><\/h2>\n

The gut impacts many functions of the body… and potentially plays a big role in Parkinson’s.<\/p>\n[one_half]\n

\n

We hope you enjoy this week’s\u00a0Editor’s Choice posts! Don’t forget to share!<\/h4>\n

Do you have a rare disease experience of your own? Share with us here.<\/a><\/h3>\n","protected":false},"excerpt":{"rendered":"

Happy Thursday everyone! This week, we’re highlights two stories about patients taking action to solve problems in their life: one patient innovates to improve their care, and another starts a rare support group. We also have an article about increasing MS treatment prices, and news about research into the origins of Parkinson’s disease. [one_half]   […]<\/p>\n","protected":false},"author":1,"featured_media":16907,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ocean_front_end_style_editor":"no","ocean_post_layout":"","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"0","ocean_second_sidebar":"0","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"0","ocean_custom_header_template":"0","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"0","ocean_menu_typo_font_family":"0","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"default","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"default","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"0","ocean_post_oembed":"","ocean_post_self_hosted_media":"","ocean_post_video_embed":"","ocean_link_format":"","ocean_link_format_target":"self","ocean_quote_format":"","ocean_quote_format_link":"post","ocean_gallery_link_images":"off","ocean_gallery_id":[]},"categories":[12007],"tags":[252],"_links":{"self":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/posts\/153718"}],"collection":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/comments?post=153718"}],"version-history":[{"count":0,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/posts\/153718\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/media\/16907"}],"wp:attachment":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/media?parent=153718"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/categories?post=153718"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tags?post=153718"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}