{"id":139515,"date":"2019-05-07T17:33:01","date_gmt":"2019-05-07T21:33:01","guid":{"rendered":"https:\/\/patientworthy.wpengine.com\/?post_type=tribe_events&p=139515"},"modified":"2019-05-08T16:35:27","modified_gmt":"2019-05-08T20:35:27","slug":"nord-organizacion-nacional-trastornos-raros-eventos","status":"publish","type":"tribe_events","link":"https:\/\/patientworthy.com\/es\/event\/nord-organizacion-nacional-trastornos-raros-eventos\/","title":{"rendered":"Foro de Pacientes y Familias de NORD de la Organizaci\u00f3n Nacional de Trastornos Raros, Viviendo Raro, Viviendo M\u00e1s Fuerte"},"content":{"rendered":"

 <\/p>\n

presentando<\/span><\/i><\/b>\u00a0el<\/span><\/i><\/b>\u00a0<\/span><\/p>\n

Premio<\/span><\/i><\/b>\u00a0de\u00a0<\/span><\/i><\/b>Impacto<\/span><\/i><\/b>\u00a0<\/span><\/i><\/b>Raro<\/span><\/i><\/b>\u00a02019<\/span><\/i><\/b>\u00a0<\/span><\/p>\n

Este\u00a0<\/span>foro<\/span>\u00a0de\u00a0<\/span>pacientes<\/span>\u00a0de\u00a0<\/span>enfermedades<\/span>\u00a0<\/span>raras<\/span>\u00a0<\/span>re\u00fane<\/span>\u00a0a\u00a0<\/span>profesionales<\/span>\u00a0de la\u00a0<\/span>salud<\/span>,\u00a0<\/span>m\u00e9dicos<\/span>,\u00a0<\/span>pacientes<\/span>\u00a0e<\/span>investigadores<\/span>\u00a0<\/span>m\u00e9dicos<\/span>\u00a0para\u00a0<\/span>aprender<\/span>\u00a0de\u00a0<\/span>los<\/span>\u00a0<\/span>\u00faltimos<\/span>\u00a0<\/span>descubrimientos<\/span>\u00a0<\/span>cient\u00edficos<\/span>\u00a0y\u00a0<\/span>formar<\/span>\u00a0<\/span>una<\/span>comunidad<\/span>.<\/span>\u00a0<\/span><\/p>\n

Este\u00a0<\/span>evento<\/span>\u00a0<\/span>tambi\u00e9<\/span>n<\/span>\u00a0<\/span>incluir\u00e1<\/span>\u00a0<\/span>los<\/span>\u00a0<\/span>Premio<\/span>\u00a0de\u00a0<\/span>Impacto<\/span>\u00a0<\/span>Raro<\/span>,\u00a0<\/span>un<\/span>\u00a0<\/span>evento<\/span>\u00a0<\/span>destinado<\/span>\u00a0a\u00a0<\/span>celebrar<\/span>\u00a0a las personas que\u00a0<\/span>han<\/span>\u00a0<\/span>hecho<\/span>\u00a0<\/span>contribuciones<\/span>\u00a0<\/span>considerables<\/span>\u00a0al\u00a0<\/span>bienestar<\/span>\u00a0y la\u00a0<\/span>calidad<\/span>\u00a0de\u00a0<\/span>vida<\/span>\u00a0de\u00a0<\/span>los<\/span>\u00a0<\/span>pacientes<\/span>\u00a0de<\/span>enfermedades<\/span>\u00a0<\/span>raras<\/span>\u00a0y\u00a0<\/span>sus<\/span>\u00a0<\/span>cuidadores<\/span>.<\/span>\u00a0<\/span><\/p>\n

Para\u00a0<\/span>informaci\u00f3n<\/span>\u00a0de\u00a0<\/span>registro<\/span>,\u00a0<\/span>haga<\/span>\u00a0<\/span>clic<\/span>\u00a0<\/span>aqu\u00ed<\/span><\/i>.<\/span>\u00a0<\/span><\/p>\n

Detalles<\/span><\/b>\u00a0<\/span><\/p>\n

Comienzo<\/span>:<\/span>\u00a0<\/span><\/p>\n

21 de\u00a0<\/span>J<\/span>unio<\/span>\u00a0<\/span><\/p>\n

Fin:<\/span>\u00a0<\/span><\/p>\n

23 de\u00a0<\/span>J<\/span>unio<\/span>\u00a0<\/span><\/p>\n

Costo<\/span>:<\/span>\u00a0<\/span><\/p>\n

$ 125<\/span>\u00a0<\/span><\/p>\n

Categor\u00eda<\/span>\u00a0de\u00a0<\/span>evento<\/span>:<\/span>\u00a0<\/span><\/p>\n

Enfermedad<\/span>\u00a0<\/span>rara<\/span>\u00a0<\/span><\/p>\n

Etiquetas<\/span>\u00a0de\u00a0<\/span>eventos<\/span>:<\/span>\u00a0<\/span><\/p>\n

Evento<\/span>, NORD,\u00a0<\/span>enfermedad<\/span>\u00a0<\/span>rara<\/span>, La\u00a0<\/span>Organizaci\u00f3n<\/span>\u00a0Nacional de\u00a0<\/span>Trastornos<\/span>\u00a0<\/span>Raros<\/span>\u00a0<\/span><\/p>\n

Sitio<\/span>\u00a0web:<\/span>\u00a0<\/span><\/p>\n

https:\/\/rarediseases.org\/living-rare-event-details\/<\/span><\/a>\u00a0<\/span><\/p>\n

Organizador<\/span><\/b>\u00a0<\/span><\/p>\n

Organizaci\u00f3n<\/span>\u00a0Naci<\/span>onal de\u00a0<\/span>Trastornos<\/span>\u00a0<\/span>Raro<\/span>s<\/span>\u00a0<\/span><\/p>\n

Tel\u00e9fono<\/span>:<\/span>\u00a0<\/span><\/p>\n

203-744-0100<\/span>\u00a0<\/span><\/p>\n

Sitio<\/span>\u00a0web:<\/span>\u00a0<\/span><\/p>\n

https:\/\/rarediseases.org<\/span><\/a>\u00a0<\/span><\/p>\n

Lugar de\u00a0<\/span><\/b>encuentro<\/span><\/b>\u00a0<\/span><\/p>\n

Hilton Americas Houston<\/span>\u00a0<\/span><\/p>\n

1600 Lamar Street\u00a0<\/span>\u00a0<\/span><\/p>\n

Houston, TX 77010 United States +\u00a0<\/span>Mapa<\/span>\u00a0de Google<\/span>\u00a0<\/span><\/p>\n

Tel\u00e9fono<\/span>:<\/span>\u00a0<\/span><\/p>\n

713-739-8000<\/span>\u00a0<\/span><\/p>\n

Sitio<\/span>\u00a0web:<\/span>\u00a0<\/span><\/p>\n

https:\/\/bit.ly\/2DnVCaV<\/span><\/a>\u00a0<\/span><\/p>\n

\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

  presentando\u00a0el\u00a0 Premio\u00a0de\u00a0Impacto\u00a0Raro\u00a02019\u00a0 Este\u00a0foro\u00a0de\u00a0pacientes\u00a0de\u00a0enfermedades\u00a0raras\u00a0re\u00fane\u00a0a\u00a0profesionales\u00a0de la\u00a0salud,\u00a0m\u00e9dicos,\u00a0pacientes\u00a0einvestigadores\u00a0m\u00e9dicos\u00a0para\u00a0aprender\u00a0de\u00a0los\u00a0\u00faltimos\u00a0descubrimientos\u00a0cient\u00edficos\u00a0y\u00a0formar\u00a0unacomunidad.\u00a0 Este\u00a0evento\u00a0tambi\u00e9n\u00a0incluir\u00e1\u00a0los\u00a0Premio\u00a0de\u00a0Impacto\u00a0Raro,\u00a0un\u00a0evento\u00a0destinado\u00a0a\u00a0celebrar\u00a0a las personas que\u00a0han\u00a0hecho\u00a0contribuciones\u00a0considerables\u00a0al\u00a0bienestar\u00a0y la\u00a0calidad\u00a0de\u00a0vida\u00a0de\u00a0los\u00a0pacientes\u00a0deenfermedades\u00a0raras\u00a0y\u00a0sus\u00a0cuidadores.\u00a0 Para\u00a0informaci\u00f3n\u00a0de\u00a0registro,\u00a0haga\u00a0clic\u00a0aqu\u00ed.\u00a0 Detalles\u00a0 Comienzo:\u00a0 21 de\u00a0Junio\u00a0 Fin:\u00a0 23 de\u00a0Junio\u00a0 Costo:\u00a0 $ 125\u00a0 Categor\u00eda\u00a0de\u00a0evento:\u00a0 Enfermedad\u00a0rara\u00a0 Etiquetas\u00a0de\u00a0eventos:\u00a0 Evento, NORD,\u00a0enfermedad\u00a0rara, La\u00a0Organizaci\u00f3n\u00a0Nacional de\u00a0Trastornos\u00a0Raros\u00a0 Sitio\u00a0web:\u00a0 https:\/\/rarediseases.org\/living-rare-event-details\/\u00a0 Organizador\u00a0 Organizaci\u00f3n\u00a0Nacional de\u00a0Trastornos\u00a0Raros\u00a0 Tel\u00e9fono:\u00a0 203-744-0100\u00a0 Sitio\u00a0web:\u00a0 https:\/\/rarediseases.org\u00a0 Lugar de\u00a0encuentro\u00a0 Hilton Americas Houston\u00a0 1600 Lamar Street\u00a0\u00a0 Houston, TX 77010 United States +\u00a0Mapa\u00a0de Google\u00a0 Tel\u00e9fono:\u00a0 713-739-8000\u00a0 Sitio\u00a0web:\u00a0 […]<\/p>\n","protected":false},"author":1,"featured_media":0,"template":"","meta":[],"tags":[13914,12676,13912,13913],"tribe_events_cat":[],"_links":{"self":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tribe_events\/139515"}],"collection":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/users\/1"}],"version-history":[{"count":0,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tribe_events\/139515\/revisions"}],"wp:attachment":[{"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/media?parent=139515"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tags?post=139515"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/patientworthy.com\/es\/wp-json\/wp\/v2\/tribe_events_cat?post=139515"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}