BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Patient Worthy - ECPv5.12.4//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20211120T170000
DTEND;TZID=America/New_York:20211121T110000
DTSTAMP:20261024T064535
CREATED:20211014T193427Z
LAST-MODIFIED:20211014T193427Z
UID:1811943-1637427600-1637492400@patientworthy.com
SUMMARY:Alex\, The Leukodystrophy Charity's Digital Community Weekend
DESCRIPTION:Digital Community Weekend\nNovember 20-21\, 2021 \nAlex\, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by a genetic leukodystrophy. We are holding a digital community weekend on Saturday 20th and Sunday 21st November. Our weekend will include presentations about condition management\, access to medicines\, newborn screening\, updates on existing and new research initiatives. There will be a professional round table\, bringing research companies and medical professionals together to share information and encourage collaboration and progress. You will be able to enjoy a variety of activities including wellbeing workshops\, sessions to help understand and get involved with the work of Alex TLC\, and entertainment. There will also be opportunities to speak to others facing similar challenges to you. \nTo learn more about this event\, click here.\nTo get register for this event\, click here.
URL:https://patientworthy.com/event/alex-leukodystrophy-charitys-digital-community-weekend/
CATEGORIES:Leukodystrophy
END:VEVENT
END:VCALENDAR