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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180420
DTEND;VALUE=DATE:20180423
DTSTAMP:20260505T214601
CREATED:20180329T150154Z
LAST-MODIFIED:20180329T150154Z
UID:84527-1524182400-1524441599@patientworthy.com
SUMMARY:Bardet-Biedl Syndrome UK's Family Conference
DESCRIPTION:Family Conference 2018\nThis conference will be an opportunity for BBS and LM families to meet and network with one another. Attendees will also be able to learn about the latest updates in treatment development and research from renowned BBS and LM experts. \nParents will also have the chance to consult with medical professionals about their most immediate concerns regarding day to day management of Bardet-Bield and Laurence-Moon syndromes. \nRegistration is free for: \nIndividuals who have BBS\n17yrs + Under\nBBS UK Management Committee\nBBS Clinics Team Members \nFamily members: £20\nGeneral delegates: £30\nProfessionals: £50
URL:https://patientworthy.com/event/bardet-biedl-syndrome-uks-conference-2018/
LOCATION:Hilton Hotel Northampton\, 100 Watering Lane\, Northampton\, United Kingdom
CATEGORIES:Bardet-Biedl Syndrome,Laurence-Moon Syndrome,Rare Disease
ORGANIZER;CN="Bardet-Biedl%20Syndrome%20UK":MAILTO:info@bbsuk.org.uk
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