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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20240310T070000
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DTSTART:20241103T060000
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DTSTART;TZID=America/New_York:20240506T080000
DTEND;TZID=America/New_York:20240506T170000
DTSTAMP:20260909T032246
CREATED:20240506T200028Z
LAST-MODIFIED:20240506T200028Z
UID:3491909-1714982400-1715014800@patientworthy.com
SUMMARY:The BHD Foundation's BHD Community Virtual Symposium 2024
DESCRIPTION:The BHD Foundation’s \nBHD Community Symposium 2024\nOctober 12\, 2024 \nThis year’s symposium is focussed on the patient community. The agenda is being set by the patients following feedback from a patient survey. Patients and family members will be able to learn more about BHD from clinicians and patients who have lived experience. We will be providing an update on currently funded research by the Myrovlytis Trust direct from the researchers. Patients and family members will also have the opportunity to talk to one another and specialists about BHD. \nThis is an online event. To sign up and learn more\, click here.
URL:https://patientworthy.com/event/bhd-foundations-community-symposium-2024/
CATEGORIES:Birt-Hogg-Dube Syndrome
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