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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20180728
DTEND;VALUE=DATE:20180729
DTSTAMP:20260928T120852
CREATED:20180430T185225Z
LAST-MODIFIED:20180430T185225Z
UID:89451-1532736000-1532822399@patientworthy.com
SUMMARY:The Bohring-Opitz Syndrome Foundation's BOS Family Meet-Up
DESCRIPTION:The 2018 BOS Family Meet-Up\nThis conference will be an event of support and celebration for BOS patients and their families. Attendees will be able to network\, share stories\, and learn from one another about strategies for managing BOS. \nStay tuned at the event website for more logistical information to be announced soon.
URL:https://patientworthy.com/event/bohring-opitz-syndrome-foundations-family-meet-up/
LOCATION:UCLA Luskin Conference Center\, 425 Westwood Plaza\, Los Angeles\, CA\, United States
CATEGORIES:Bohring-Opitz Syndrome,Rare Disease
ORGANIZER;CN="Bohring-Optiz%20Syndrome%20Foundation":MAILTO:info@bos-foundation.org
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