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X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20210314T100000
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DTSTART;TZID=America/Los_Angeles:20210217T130000
DTEND;TZID=America/Los_Angeles:20210217T143000
DTSTAMP:20260716T000020
CREATED:20210211T223639Z
LAST-MODIFIED:20210211T223639Z
UID:811130-1613566800-1613572200@patientworthy.com
SUMMARY:Cystic Fibrosis Research\, Inc.'s California Rare Disease Advisory Council Virtual Coalition Meeting
DESCRIPTION:California Rare Disease Advisory Council Virtual Coalition Meeting\nFebruary 17\, 2021 \nLegislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February.  If you would like to review the proposed bill language\, please email Stacie Reveles at sreveles@cfri.org.  \nOur next coalition meeting will take place in conjunction with California’s Rare Action Network Rare Disease Day Virtual Event. \nClick here to sign up and learn more.
URL:https://patientworthy.com/event/cystic-fibrosis-research-incs-rare-disease-coalition-meeting/
CATEGORIES:Cystic Fibrosis
ORGANIZER;CN="Cystic%20Fibrosis%20Research%20Inc.":MAILTO:cfri@cfri.org 
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