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X-WR-CALDESC:Events for Patient Worthy
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DTSTART;TZID=America/Chicago:20200627T083000
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DTSTAMP:20260527T111011
CREATED:20200214T164730Z
LAST-MODIFIED:20200214T164730Z
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SUMMARY:The Everylife Foundation for Rare Diseases and Global Genes' RARE on the Road Rare Disease Leadership Tour
DESCRIPTION:RARE on the Road: a Rare Disease Leadership Tour\nJune 27th\, 2020 \nNew Orleans\, LA \nThe Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates\, patients\, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients\, discover ways to tell your story as someone affected by rare disease\, and learn how you can help save lives and have a direct impact on public policy. \nTo learn more about the event\, click here. To register\, click here.
URL:https://patientworthy.com/event/everylife-foundation-rare-diseases-global-genes-road-tour-4/
LOCATION:Loyola University New Orleans – Danna Student Center\, Audubon Room 6363 St. Charles Ave\, New Orleans\, LA\, 70118\, United States
CATEGORIES:Rare Disease
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