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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20230312T070000
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DTSTART:20231105T060000
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DTSTART;VALUE=DATE:20230908
DTEND;VALUE=DATE:20230911
DTSTAMP:20260526T063319
CREATED:20230615T153537Z
LAST-MODIFIED:20230615T153537Z
UID:3487054-1694131200-1694390399@patientworthy.com
SUMMARY:FD/MAS Alliance's FD/MAS Community Conference 2023
DESCRIPTION:FD/MAS Community Conference 2023: Facing the Future – Together\nSeptember 8-10\, 2023 \nWe proudly invite you to the FD/MAS Community Conference: a weekend of education\, connection\, and collaborative research. \nThe FD/MAS Alliance Community Conference aims to combine patient-centered science and real-world strategies for patients and families living with fibrous dysplasia\, McCune-Albright syndrome (FD/MAS). \nThis meeting coincides with the inaugural meeting of the newly incorporated International Consortium for FD/MAS (ICFDMAS)\, a consortium of research and patient support groups from 13 countries. The FD/MAS Alliance played a large role in the formation of this group – another tribute to the FD/MAS Alliance! Part of this meeting will entail updating the Management Guidelines for fibrous dysplasia/McCune-Albright syndrome. \nTo sign up and learn more\, click here.
URL:https://patientworthy.com/event/fdmas-alliances-community-conference-2023/
LOCATION:Doubletree Silver Spring\, 8777 George Ave\, Silver Spring\, MD\, 20910\, United States
CATEGORIES:Fibrous dysplasia,McCune-Albright syndrome
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