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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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DTSTART:20220313T070000
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DTSTART;VALUE=DATE:20220618
DTEND;VALUE=DATE:20220620
DTSTAMP:20260802T221334
CREATED:20220524T205915Z
LAST-MODIFIED:20220524T205915Z
UID:3011339-1655510400-1655683199@patientworthy.com
SUMMARY:The FSHD Society's 2022 FSHD Connect
DESCRIPTION:2022 FSHD Connect\nJune 18-19\, 2022 \nOrlando\, FL \nAn educated\, empowered\, and connected community can achieve extraordinary things! Every two years\, the FSHD Connect conference brings together hundreds of patients\, family members\, researchers\, and health experts for a day-and-a-half of immersive learning and community building. Our 2022 meeting will feature talks by thought leaders on the latest in healthcare\, therapy development\, clinical trials\, and firing up the FSHD community to take on the challenges of living well and pushing for effective therapies. Breakout sessions will help you live your best life\, with discussion about health\, diet\, exercise and physical therapy\, dealing with practical and emotional transitions\, caregiving\, the science of FSHD\, and much more. \nThis event will take place both in-person and virtually. \nRegistration for the virtual event is still available. Click here to get started.
URL:https://patientworthy.com/event/fshd-societys-2022-connect/
LOCATION:1 Charles St\, Boston\, MA\, 02108\, United States
CATEGORIES:Facioscapulohumeral muscular dystrophy
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