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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20230312T070000
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DTSTART;TZID=America/New_York:20230221T190000
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UID:3484254-1677006000-1677009600@patientworthy.com
SUMMARY:The FSHD Society's Early-Onset Parent Roundtable
DESCRIPTION:Early-Onset Parent Roundtable\nFebruary 21\, 2023 \nJoin us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month\, where parents meet to exchange ideas\, offer support\, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents. \nWe’d love your thoughts and participation. Please join us and bring your ideas\, questions\, answers\, and tips and tricks. \n\nOnce you join the group by submitting your RSVP for a meeting\, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2022\, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org\n\nTo sign up\, click here. 
URL:https://patientworthy.com/event/fshd-societys-early-onset-parent-roundtable/
CATEGORIES:Facioscapulohumeral muscular dystrophy
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