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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190918
DTEND;VALUE=DATE:20190921
DTSTAMP:20260504T022427
CREATED:20190429T191831Z
LAST-MODIFIED:20190429T191831Z
UID:138535-1568764800-1569023999@patientworthy.com
SUMMARY:Global Genes' RARE Patient Advocacy Summit
DESCRIPTION:The Global Genes RARE Patient Advocacy Summit\nThis conference will be a convergence of a variety of rare disease stakeholders\, such as rare disease patients\, world renowned experts\, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in rare disease research and treatment. \n\nTo register for this event\, click here.
URL:https://patientworthy.com/event/global-genes-rare-patient-advocacy-summit/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Global%20Genes":MAILTO:events@globalgenes.org
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