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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180718
DTEND;VALUE=DATE:20180723
DTSTAMP:20260819T014640
CREATED:20180412T220658Z
LAST-MODIFIED:20180412T220658Z
UID:87878-1531872000-1532303999@patientworthy.com
SUMMARY:Hunter's Hope's 2018 Family Symposium
DESCRIPTION:Freedom & Hope\nThis event will be a chance for patients and families affected by Krabbe disease and other leukodystrophies to come together for to build community\, spread hope\, and share stories in an environment free from judgement. \nThe family conference will be preceded by a invitation-only medical symposium that will present that latest research and treatment updates for Krabbe disease and other leukodystrophies. \nFor registration information\, please contact Hunter’s Hope via email at symposium@huntershope.org.
URL:https://patientworthy.com/event/hunters-hopes-2018-family-symposium/
LOCATION:Holiday Valley Resort\, 6557 Holiday Valley Road\, Ellicottville\, United States
CATEGORIES:Krabbe Disease,Rare Disease
ORGANIZER;CN="Hunter%27s%20Hope":MAILTO:info@huntershope.org
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