BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Patient Worthy - ECPv5.12.4//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20200308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20201101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201029T123000
DTEND;TZID=America/New_York:20201029T163000
DTSTAMP:20260622T125807
CREATED:20200929T203205Z
LAST-MODIFIED:20200929T203205Z
UID:322234-1603974600-1603989000@patientworthy.com
SUMMARY:KrabbeConnect's Patient-Focused Drug Development Meeting
DESCRIPTION:Patient-Focused Drug Development Meeting with the FDA\nOrganized by the National Organization for Rare Disorders (NORD)\, this meeting will be a critical opportunity for patients to communicate directly with regulators at the US Food and Drug Administration (FDA). \nThis is an opportunity for the Krabbe disease community to articulate their experiences and help the FDA understand what improvements in treatment would truly look like. This event will involve collaboration from a number of patient advocacy groups\, and all Krabbe disease caregivers and patients are encouraged to attend. \nAre you interested in attending this event? Click here to get signed up.
URL:https://patientworthy.com/event/krabbeconnects-patient-focused-drug-development-meeting/
CATEGORIES:Krabbe Disease
ORGANIZER;CN="KrabbeConnect":MAILTO:info@krabbeconnect.org
END:VEVENT
END:VCALENDAR