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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20240310T070000
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DTSTART:20241103T060000
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DTSTART;VALUE=DATE:20240617
DTEND;VALUE=DATE:20240623
DTSTAMP:20260422T095630
CREATED:20240612T211453Z
LAST-MODIFIED:20240612T211453Z
UID:3492269-1718582400-1719100799@patientworthy.com
SUMMARY:The Marfan Foundation's Global Virtual Conference
DESCRIPTION:The Global Virtual Conference \nJune 17-22\, 2024 \nThe Marfan Foundation’s Global Virtual Conference connects people living with genetic aortic and vascular conditions\, their loved ones\, healthcare providers\, and researchers from around the world for a unique event that holistically explores the many facets of life with Marfan\, Loeys-Dietz\, VEDS\, and related conditions. Topics include advancements in medical management\, mental health and well-being\, the latest research\, community-building\, and much more. A series of live\, engaging sessions will culminate with a virtual Victory Party celebration. \nAttendees can choose sessions based on what’s most important to them and hear from medical experts who will be available to answer questions. Condition-specific breakout sessions will create space for community members to connect with one another. \nConference 2024 is offered free to the Foundation community and will span five days\, June 17-22. In honor of Juneteenth commemorations\, there will be no sessions on June 19. Afternoon and evening sessions will be available to accommodate varying schedules and time zones. Sessions recorded will be noted in event descriptions. \nThe deadline to register for the kids and teens sessions is on Thursday\, June 13. \nThere is no deadline for any other sessions. \nTo sign up\, click here.
URL:https://patientworthy.com/event/marfan-foundations-global-virtual-conference/
CATEGORIES:Marfan Syndrome
ORGANIZER;CN="The%20Marfan%20Foundation":MAILTO:staff@marfan.org
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