BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Patient Worthy - ECPv5.12.4//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20200308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20201101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200309T080000
DTEND;TZID=America/New_York:20200309T170000
DTSTAMP:20260612T144529
CREATED:20200107T223825Z
LAST-MODIFIED:20200127T222115Z
UID:162237-1583740800-1583773200@patientworthy.com
SUMMARY:The Muscular Dystrophy Association's Pompe Disease Patient-Focused Drug Development Meeting
DESCRIPTION:Pompe Disease Patient-Focused Drug Development Meeting\nMarch 9th\, 2020 \nThis Patient-Focused Drug Development meeting is designed as a convergence of critical FDA officials\, Pompe disease patients\, pharmaceutical companies\, and other relevant stakeholders for an important day of conversation about the future of Pompe disease treatment. \nThis event will primarily feature patient testimony through panels and audience feedback related to the day to day challenges of living with this rare disease\, as well as the goals that a future therapy for Pompe disease should aim to reach. \nTo register for this meeting\, click here.
URL:https://patientworthy.com/event/muscular-dystrophy-association-pompe-disease-drug-meeting/
LOCATION:College Park Marriott Hotel and Conference Center\, 3501 University Boulevard E.\, Hyattsville\, MD\, 20783\, United States
CATEGORIES:Pompe Disease
END:VEVENT
END:VCALENDAR