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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20180311T100000
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DTSTART;TZID=America/Los_Angeles:20180706T080000
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DTSTAMP:20260816T083259
CREATED:20180416T221540Z
LAST-MODIFIED:20180416T221540Z
UID:88199-1530864000-1530982800@patientworthy.com
SUMMARY:The National Foundation for Ectodermal Dysplasias' 2018 Family Conference
DESCRIPTION:“Bridges to Inspiration”\nAt the 2018 conference\, families and patients affected by ectrodactyly-ectodermal dysplasia-cleft syndrome and other ectodermal dysplasias will be able to build community with each other\, network\, and share stories. \nIn addition\, medical experts will be available for one on one consultation in order to determine the best treatment profile for patients. \nRegistration\n$100/$150 (Child/adult)\nLate registration (5/26)\n$150/$200
URL:https://patientworthy.com/event/national-foundation-ectodermal-dysplasias-2018-family-conference/
LOCATION:Doubletree Portland\, 1000 NE Multnomah Street\, Portland\, OR\, United States
CATEGORIES:Ectrodactyly-Ectodermal Dysplasia-Cleft Syndrome,Rare Disease
ORGANIZER;CN="National%20Foundation%20for%20Ectodermal%20Dysplasias":MAILTO:info@nfed.org
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