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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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DTSTART:20210314T070000
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DTSTART:20211107T060000
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DTSTART;VALUE=DATE:20210626
DTEND;VALUE=DATE:20210629
DTSTAMP:20260614T123706
CREATED:20210524T140747Z
LAST-MODIFIED:20210524T140747Z
UID:1256784-1624665600-1624924799@patientworthy.com
SUMMARY:National Organization for Rare Disorders' Living Rare\, Living Stronger Patient and Family Forum
DESCRIPTION:The 2021 Living Rare\, Living Stronger Patient and Family Interactive Virtual Forum\nFeaturing the Rare Impact Awards \nJune 26-28\, 2021 \nThis forum is specifically geared to be a patient-centric event. As always\, this forum is meant to be a space for the rare disease community to converge for inspiration\, education\, networking\, fun\, and hope. The agenda includes sessions in which patients and their families can gain insight and practical tools for living their best lives with rare diseases\, with workshops provided for newly-diagnosed patients\, long-term patients\, caregivers\, siblings\, physicians and medical students. The Forum will feature interactive Q&As\, inspiring online panels presented by patients\, caregivers and top rare disease medical experts—plus surprises! \nThe forum will take place on the 26th and 27th\, while the Rare Impact Awards will be held on the 28th. \nInterested in attending? Click here to register.\n 
URL:https://patientworthy.com/event/national-organization-rare-stronger-patient-family-forum/
CATEGORIES:Rare Disease
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