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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20210314T070000
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DTSTART;TZID=America/New_York:20210325T140000
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SUMMARY:NORD's The Rare Sibling Experience Webinar
DESCRIPTION:The Rare Sibling Experience\nMarch 25\, 2021 \nRare disease impacts extend beyond the patient themselves and can have a profound effect on families. Siblings of rare patients are placed in an unusual position replete with its own challenges. This program will investigate the role of rare siblings with input from multiple experts on the subject including: \n\nEden Van Alstine\, MS\, CCLS\, Child Life Specialist\, Children’s Hospital of Philadelphia\nKate McGowen\, MEd\, CCLS II\, Child Life Specialist\, Children’s Hospital of Philadelphia\nDr. David Rintell\, Ed.D\, Psychologist\, VP and Head of Patient Advocacy\, BridgeBio\nHannah Raskin-Gross\, Rare Sibling Advocate\, Congenital Hyperinsulinism\n\nClick here to sign up.
URL:https://patientworthy.com/event/nords-rare-sibling-experience-webinar/
CATEGORIES:Rare Disease
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