BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Patient Worthy - ECPv5.12.4//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20150308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20151101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150924
DTEND;VALUE=DATE:20150926
DTSTAMP:20260627T185916
CREATED:20150907T220812Z
LAST-MODIFIED:20170530T205013Z
UID:3443-1443052800-1443225599@patientworthy.com
SUMMARY:Rare Patient Advocacy Summit
DESCRIPTION:A rare diagnosis changes everything.  You weren’t given a playbook on how to cope\, how to take that next step\, and you certainly weren’t handed a blueprint on how to build an advocacy organization or successfully bring a therapy to market. The good news is that rare disease advocates are some of the most inspiring\, innovative activists on the planet\, and Global Genes works to bring the community together to share best practices\, create important introductions\, and help catalyze powerful collaborations. \nThis is why Global Genes would like to invite you to join The Fourth Annual RARE Patient Advocacy Summit on September 24 – 25\, 2015 in Huntington Beach\, California! The goal of this year’s RARE Patient Advocacy Summit is for patients\, caregivers\, and advocates to walk away equipped with actionable next steps whether you have been recently diagnosed\, are building a disease community\, thinking about funding early research\, actively engaged in developing a treatment\, or have been advocating in rare disease for decades.
URL:https://patientworthy.com/event/rare-patient-advocacy-summit/
LOCATION:Unnamed Venue\, Huntington Beach\, CA\, United States
CATEGORIES:Rare Disease
END:VEVENT
END:VCALENDAR