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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180628
DTEND;VALUE=DATE:20180702
DTSTAMP:20260815T185636
CREATED:20180403T213341Z
LAST-MODIFIED:20180403T213341Z
UID:87000-1530144000-1530489599@patientworthy.com
SUMMARY:The CdLS Foundation's National Family Conference
DESCRIPTION:Biennial Conference\nThis conference will be a chance for families affected by Cornelia de Lange syndrome to interact one on one with medical experts\, build community with each other\, and learn how to manage the syndrome on a daily basis and face the challenges ahead. \nRegistration\nAdults: $390\nCaregivers: $260\nChildren: $205/FREE (age 3-17/age 2 and under)\nPatients: FREE\nOne-day professional: $110\nBanquet: $55/$35 (kids/adults)
URL:https://patientworthy.com/event/the-cdls-foundations-biennial-conference/
LOCATION:Marriott City Center\, 30 South 7th Street\, Minneapolis\, MN\, United States
CATEGORIES:Cornelia de Lange Syndrome,Rare Disease
ORGANIZER;CN="The%20CdLS%20Foundation":MAILTO:info@cdlsusa.org
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