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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180712
DTEND;VALUE=DATE:20180716
DTSTAMP:20260717T110647
CREATED:20180411T215605Z
LAST-MODIFIED:20180411T215605Z
UID:87780-1531353600-1531699199@patientworthy.com
SUMMARY:The Marfan Foundation's Annual Conference
DESCRIPTION:  \nThis conference is available to children and adults affected by Marfan syndrome and their families. It will serve as an opportunity to meet other members of the Marfan syndrome patient community and learn more from experts about the latest information about this syndrome. \nParticipants will also learn about best practices for managing the condition and will have the opportunity to connect with other families and share their stories. \nRegistration\nEarly registration (Before 6/1): $375\nLate registration (After 6/1): $425\nSingle day registration: $200/$150 (Saturday/Sunday)\n 
URL:https://patientworthy.com/event/the-marfan-foundations-annual-conference/
LOCATION:Santa Clara Marriott\, 2700 Mission College Blvd\, Santa Clara\, CA\, United States
CATEGORIES:Marfan Syndrome,Rare Disease
ORGANIZER;CN="The%20Marfan%20Foundation":MAILTO:staff@marfan.org
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