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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180713
DTEND;VALUE=DATE:20180716
DTSTAMP:20260527T033911
CREATED:20180608T183938Z
LAST-MODIFIED:20180608T183938Z
UID:93223-1531440000-1531699199@patientworthy.com
SUMMARY:The Myotubular Trust's Family Conference 2018
DESCRIPTION:Family Conference 2018\n“Together Even Stronger”\nThis conference will be open to patients affected by myotubular and centronuclear myopathies\, their families\, and caregivers. \nThe event will feature workshops and speakers that will help inform participants abouts the latest in research and treatment. \nThe conference is FREE for patients\, their families\, and caregivers. Other guests will be expected to pay £100 per day. \nAll participants are responsible for covering accommodations.
URL:https://patientworthy.com/event/the-myotubular-trusts-family-conference-2018/
LOCATION:Holiday Inn London-Bloomsbury\, Coram Street\, London\, WC1N 1HT\, United Kingdom
CATEGORIES:Centronuclear Myopathy,Myotubular Myopathy,Rare Disease
ORGANIZER;CN="ZNM%20%E2%80%93%20Zusammen%20Stark":MAILTO:holfischer@posteo.de
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