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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180719
DTEND;VALUE=DATE:20180722
DTSTAMP:20261013T033102
CREATED:20180412T225933Z
LAST-MODIFIED:20180412T225933Z
UID:87891-1531958400-1532217599@patientworthy.com
SUMMARY:The Noonan Syndrome Foundation's 2018 Conference
DESCRIPTION:The 2018 Noonan Syndrome Foundation Conference\nThe event will be an opportunity for Noonan syndrome patients and their families to share their experiences with one another and build community. This will also be a chance to learn about the latest news in research and treatment. \nFamilies can also learn about day to day disease management and how to cope with specific symptoms with direct consultations with Noonan syndrome experts. \nRegistration\n$200/$125 (Adults/children)
URL:https://patientworthy.com/event/the-noonan-foundations-2018-conference/
LOCATION:Pointe Hilton Squaw Peak Resort\, 7677 North 16th Street\, Phoenix\, AZ\, United States
CATEGORIES:Noonan Syndrome,Rare Disease
ORGANIZER;CN="Noonan%20Syndrome%20Foundation":MAILTO:info@teamnoonan.org
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