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Events for April 20, 2018

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The Cystinosis Research Foundation’s Day of Hope Family Conference

April 19, 2018 - April 21, 2018
Fashion Island Hotel, 690 Newport Center Dr.
Newport Beach, CA United States + Google Map

Presenting the CRF 2018 Day of Hope Family Conference The event will be an opportunity for cystinosis patients and their families to share their experiences with one another and build community. This will also be an opportunity to learn about the latest news in research and treatment. Families can also learn about day to day […]

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Bardet-Biedl Syndrome UK’s Family Conference

April 20, 2018 - April 22, 2018
Hilton Hotel Northampton, 100 Watering Lane
Northampton, United Kingdom + Google Map
£20

Family Conference 2018 This conference will be an opportunity for BBS and LM families to meet and network with one another. Attendees will also be able to learn about the latest updates in treatment development and research from renowned BBS and LM experts. Parents will also have the chance to consult with medical professionals about […]

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