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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180620
DTEND;VALUE=DATE:20180624
DTSTAMP:20261113T153002
CREATED:20180405T160943Z
LAST-MODIFIED:20180405T160943Z
UID:87108-1529452800-1529798399@patientworthy.com
SUMMARY:The CCHS Network's 5th International CCHS Conference
DESCRIPTION:“The Future is NOW—Priorities\, Partnerships\, and Patient Voice”\nThe conference will be an event for health professionals and CCHS patient community to come together in collaboration\, communication\, and support. \nAttendees will learn about the latest in CCHS research and treatments. \nRegistration\nMembers: FREE\nProfessionals/Non-members: $200\nWith dinner (one person/two people): $250/$300
URL:https://patientworthy.com/event/the-cchs-networks-5th-international-cchs-conference/
LOCATION:Chase Park Plaza\, 212 N. Kingshighway Blvd\, St. Louis\, MO\, United States
CATEGORIES:Congenital Central Hypoventilation Syndrome,Rare Disease
ORGANIZER;CN="CCHS%20Network":MAILTO:mycchsnetwork@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180621
DTEND;VALUE=DATE:20180624
DTSTAMP:20261113T153002
CREATED:20180405T182810Z
LAST-MODIFIED:20180405T182810Z
UID:87119-1529539200-1529798399@patientworthy.com
SUMMARY:The Pitt-Hopkins Research Foundation's Family Conference & Scientific Symposium
DESCRIPTION:2018 Family Conference & Scientific Symposium\nThis conference will be an opportunity for Pitts-Hopkins syndrome patients and medical researchers to come together\, collaborate\, and network. \nPatients and their families will have the opportunity to learn the latest in treatment and research. \nRegistration\nParents\, caregivers (single day): $40\nAdult lunch (per day): $10\nChild lunch\, 0-18 (per day): $5\nThursday symposium: $100\nThursday scientific symposium will be at Radisson Blu Mall of America 2100 Killebrew Drive\, Bloomington\, MN 55425.
URL:https://patientworthy.com/event/pitt-hopkins-research-foundations-family-conference-symposium/
LOCATION:Embassy Suites by Hilton\, 2800 American Boulevard West\, Minneapolis\, MN\, United States
CATEGORIES:Pitt-Hopkins Syndrome,Rare Disease
ORGANIZER;CN="Pitt-Hopkins%20Research%20Foundation":MAILTO:information@pitthopkins.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180621
DTEND;VALUE=DATE:20180625
DTSTAMP:20261113T153002
CREATED:20180405T193750Z
LAST-MODIFIED:20180405T193750Z
UID:87137-1529539200-1529884799@patientworthy.com
SUMMARY:Choroideremia Research Foundation's 2018 Conference
DESCRIPTION:2018 CRF Conference\nThe conference will be a chance for families impacted by choroideremia to share with one another and build community. \nConferences are held every two years and are opportunities to learn about the latest research and treatments for choroideremia. \nRegistration\nEarly registration (until 4/15): $100/$25/FREE (Adult/Teens/Children 12 and under)\nRegular registration: $125/$50/FREE (Adults/Teens/Children 12 and under)
URL:https://patientworthy.com/event/choroideremia-research-foundations-2018-conference/
LOCATION:Embassy Suites Dallas\, 4650 West Airport Freeway\, Irving\, TX\, United States
CATEGORIES:Choroideremia,Rare Disease
ORGANIZER;CN="Choroideremia%20Research%20Foundation":MAILTO:erichartman@curechm.org
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