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VERSION:2.0
PRODID:-//Patient Worthy - ECPv5.12.4//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20180311T070000
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TZOFFSETFROM:-0400
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TZNAME:EST
DTSTART:20181104T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20180716
DTEND;VALUE=DATE:20180722
DTSTAMP:20260407T142359
CREATED:20180412T151652Z
LAST-MODIFIED:20180412T151652Z
UID:87818-1531699200-1532217599@patientworthy.com
SUMMARY:The Barth Syndrome Foundation's Scientific\, Medical\, and Family Conference
DESCRIPTION:THE 9TH INTERNATIONAL SCIENTIFIC\, MEDICAL & FAMILY CONFERENCE\n“Power Up!”\nThis event will be a convergence of health providers\, researchers\, and industry leadership to present the latest research and treatments in the field of Barth syndrome to the patient community. \nThe event will also be an opportunity for Barth syndrome patients and their relatives to network and share their experiences with one another. \n 
URL:https://patientworthy.com/event/barth-syndrome-foundations-scientific-medical-family-conference/
LOCATION:Hilton Clearwater Beach Hotel\, 400 MANDALAY AVENUE\, Clearwater\, FL\, United States
CATEGORIES:Barth Syndrome,Rare Disease
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END:VCALENDAR