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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20180716
DTEND;VALUE=DATE:20180722
DTSTAMP:20261113T152852
CREATED:20180412T151652Z
LAST-MODIFIED:20180412T151652Z
UID:87818-1531699200-1532217599@patientworthy.com
SUMMARY:The Barth Syndrome Foundation's Scientific\, Medical\, and Family Conference
DESCRIPTION:THE 9TH INTERNATIONAL SCIENTIFIC\, MEDICAL & FAMILY CONFERENCE\n“Power Up!”\nThis event will be a convergence of health providers\, researchers\, and industry leadership to present the latest research and treatments in the field of Barth syndrome to the patient community. \nThe event will also be an opportunity for Barth syndrome patients and their relatives to network and share their experiences with one another. \n 
URL:https://patientworthy.com/event/barth-syndrome-foundations-scientific-medical-family-conference/
LOCATION:Hilton Clearwater Beach Hotel\, 400 MANDALAY AVENUE\, Clearwater\, FL\, United States
CATEGORIES:Barth Syndrome,Rare Disease
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180718
DTEND;VALUE=DATE:20180723
DTSTAMP:20261113T152852
CREATED:20180412T212506Z
LAST-MODIFIED:20180412T212506Z
UID:87871-1531872000-1532303999@patientworthy.com
SUMMARY:SOFT's SOFT Medical & Family Conference
DESCRIPTION:The 32nd Annual Medical & Family Conference\nThis conference will be a chance for the trisomy 18 patient community to come together\, to share stories\, spread support\, and build community. \nIn addition\, participants will learn the latest in trisomy 18 research and treatments\, and will have the opportunity to learn new strategies for managing trisomy 18. \nRegistration\n$135/$85 (Adults/Child)\nPicnic: $35/$25\nThursday: $62\nChildren under age 5 are free.
URL:https://patientworthy.com/event/softs-soft-medical-family-conference/
LOCATION:Hotel Red Lion\, 3321 S 72nd St\, Omaha\, NE\, United States
CATEGORIES:Rare Disease,Trisomy 18
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180718
DTEND;VALUE=DATE:20180723
DTSTAMP:20261113T152852
CREATED:20180412T220658Z
LAST-MODIFIED:20180412T220658Z
UID:87878-1531872000-1532303999@patientworthy.com
SUMMARY:Hunter's Hope's 2018 Family Symposium
DESCRIPTION:Freedom & Hope\nThis event will be a chance for patients and families affected by Krabbe disease and other leukodystrophies to come together for to build community\, spread hope\, and share stories in an environment free from judgement. \nThe family conference will be preceded by a invitation-only medical symposium that will present that latest research and treatment updates for Krabbe disease and other leukodystrophies. \nFor registration information\, please contact Hunter’s Hope via email at symposium@huntershope.org.
URL:https://patientworthy.com/event/hunters-hopes-2018-family-symposium/
LOCATION:Holiday Valley Resort\, 6557 Holiday Valley Road\, Ellicottville\, United States
CATEGORIES:Krabbe Disease,Rare Disease
ORGANIZER;CN="Hunter%27s%20Hope":MAILTO:info@huntershope.org
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