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METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20180311T070000
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BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20181104T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20180725
DTEND;VALUE=DATE:20180730
DTSTAMP:20261112T144505
CREATED:20180413T213436Z
LAST-MODIFIED:20180413T213436Z
UID:88033-1532476800-1532908799@patientworthy.com
SUMMARY:American Syringomyelia & Chiari Alliance Project's Great Expectations Annual Conference
DESCRIPTION:ASAP Chiari & Syringomyelia Conference \nThis event will be an opportunity for chiari and syringomyelia patients and their families to network with one another. \nParticipants will also be able to learn about the latest in chiari and syringomyelia treatment and research. \nRegistration\n$490/$175/$95\nFamilies/adults/children\nSingle day: $70\nBanquet: $75
URL:https://patientworthy.com/event/american-syringomyelia-alliance-projects-great-expectations-conference/
LOCATION:Gaylord Palms\, 6000 West Osceola Parkway\, Kissimmee\, FL\, United States
CATEGORIES:Rare Disease,Syringomyelia
ORGANIZER;CN="American%20Syringomyelia%20%26amp%3B%20Chiari%20Alliance%20Project":MAILTO:Info@ASAP.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180726
DTEND;VALUE=DATE:20180730
DTSTAMP:20261112T144505
CREATED:20180413T214713Z
LAST-MODIFIED:20180413T214713Z
UID:88047-1532563200-1532908799@patientworthy.com
SUMMARY:The Tuberous Sclerosis Alliance's World TSC Conference
DESCRIPTION:2018 World TSC Conference\nThis event will be an opportunity for tuberous sclerosis patients and their families to network with one another. \nParticipants will also be able to learn about the latest in tuberous sclerosis treatment and research. \nRegistration\nEarly bird (before 6/1)\n$249/$199/$99 (Full conference/two days/one day)\nRegular (after 6/1)\n$350/$275/$145
URL:https://patientworthy.com/event/the-tuberous-sclerosis-alliances-world-tsc-conference/
LOCATION:Hilton Anatole Hotel\, 2201 NORTH STEMMONS FREEWAY\, Dallas\, TX\, United States
CATEGORIES:Rare Disease,Tuberous Sclerosis
ORGANIZER;CN="Tuberous%20Sclerosis%20Alliance":MAILTO:info@tsalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180726T170000
DTEND;TZID=America/New_York:20180729T120000
DTSTAMP:20261112T144505
CREATED:20180411T152635Z
LAST-MODIFIED:20180411T152635Z
UID:87665-1532624400-1532865600@patientworthy.com
SUMMARY:The Five P Minus Society's 2018 5P Society Conference
DESCRIPTION:The 5P Minus Society Conference of Champions\nThe conference will an opportunity for families affected by cri du chat syndrome (5P minus) to engage and learn from one another. This meeting of the patient community will be a great opportunity to share stories and challenges. \nIn addition\, attendees will have the opportunity to learn that latest in research and treatment for cri du chat syndrome and related disabilities. \nRegistration\nEarly bird (before July 1st)\nFamily registration(four people max): $150/$200/$75 (members/nonmembers/professionals)\nAfter July 1st: $200/$250/$100\nAdditional adults are $50 and additional children are $25.
URL:https://patientworthy.com/event/five-p-minus-societys-2018-5p-conference/
LOCATION:Pittsburgh Marriott City Center\, 112 Washington Place\, Pittsburgh\, PA\, United States
CATEGORIES:Cri Du Chat Syndrome,Rare Disease
ORGANIZER;CN="Five%20P%20Minus%20Society":MAILTO:director@fivepminus.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180727
DTEND;VALUE=DATE:20180730
DTSTAMP:20261112T144505
CREATED:20180307T031553Z
LAST-MODIFIED:20180824T142425Z
UID:81920-1532649600-1532908799@patientworthy.com
SUMMARY:2018 Scleroderma Foundation National Patient Education Conference
DESCRIPTION:
URL:https://patientworthy.com/event/2018-scleroderma-foundation-national-patient-education-conference/
LOCATION:Loews Philadelphia Hotel\, 1200 Market St.\, Philadelphia\, VA\, 19107\, United States
CATEGORIES:Scleroderma Foundation
ORGANIZER;CN="Scleroderma%20Foundation":MAILTO:sfinfo@scleroderma.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180727
DTEND;VALUE=DATE:20180730
DTSTAMP:20261112T144505
CREATED:20180414T152510Z
LAST-MODIFIED:20180414T152510Z
UID:88092-1532649600-1532908799@patientworthy.com
SUMMARY:The Scleroderma Foundation's National Patient Education Conference
DESCRIPTION:The 2018 Scleroderma Foundation\nNational Patient Education Conference\nThe event will be an opportunity for scleroderma patients and their families to come together for a time of solidarity\, community building\, and networking. \nIn addition\, patients will be able to learn the latest about scleroderma research and treatments\, as well as managing the disease on a daily basis. \nRegistration\nEarly bird (until 5/30)\n$75/$145/$200/$250/$495 (child/meals only/member/nonmember/corporate reps)
URL:https://patientworthy.com/event/scleroderma-foundations-national-patient-education-conference/
LOCATION:Loews Philadelphia Hotel\, 1200 Market St.\, Philadelphia\, VA\, 19107\, United States
CATEGORIES:Rare Disease,Scleroderma
ORGANIZER;CN="Scleroderma%20Foundation":MAILTO:sfinfo@scleroderma.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180727
DTEND;VALUE=DATE:20180730
DTSTAMP:20261112T144505
CREATED:20180414T152936Z
LAST-MODIFIED:20180414T152936Z
UID:88094-1532649600-1532908799@patientworthy.com
SUMMARY:The Scleroderma Foundation’s National Patient Education Conference
DESCRIPTION:The 2018 Scleroderma Foundation\nNational Patient Education Conference\nThe event will be an opportunity for systemic scleroderma patients and their families to come together for a time of solidarity\, community building\, and networking. \nIn addition\, patients will be able to learn the latest about systemic scleroderma research and treatments\, as well as managing the disease on a daily basis. \nRegistration\nEarly bird (until 5/30)\n$75/$145/$200/$250/$495 (child/meals only/member/nonmember/corporate reps)
URL:https://patientworthy.com/event/the-scleroderma-foundations-national-patient-education-conference/
LOCATION:Loews Philadelphia Hotel\, 1200 Market St.\, Philadelphia\, VA\, 19107\, United States
CATEGORIES:Rare Disease,Systemic Scleroderma
ORGANIZER;CN="Scleroderma%20Foundation":MAILTO:sfinfo@scleroderma.org
END:VEVENT
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