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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180802
DTEND;VALUE=DATE:20180806
DTSTAMP:20261111T140807
CREATED:20180418T220718Z
LAST-MODIFIED:20180418T220718Z
UID:88420-1533168000-1533513599@patientworthy.com
SUMMARY:The National Niemann-Pick Disease Foundation's Annual Family Conference
DESCRIPTION:NNPDF’s 26th Annual Family Conference\nThis event is geared towards the families affected by Niemann-Pick disease. The conference will be a unique and exciting opportunity for attendees to learn the latest in research and treatment for Niemann-Pick disease. \nPatient families will also have the chance to share stories and support each other. \nRegistration\nEarly bird (by 6/14)\n$75/$50/$100/$450 (Immediate adult family/children/educators\, medical professionals/corporate)\nRegular (by 7/6)\n$125/$100/$150/$450
URL:https://patientworthy.com/event/national-niemann-pick-disease-foundations-annual-conference/
LOCATION:Hyatt Regency Louisville\, 320 W Jefferson St\, Louisville\, KY\, United States
CATEGORIES:Niemann-Pick Disease,Rare Disease
ORGANIZER;CN="National%20Niemann-Pick%20Disease%20Foundation":MAILTO:nnpdf@nnpdf.org
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DTSTART;VALUE=DATE:20180802
DTEND;VALUE=DATE:20180806
DTSTAMP:20261111T140807
CREATED:20180428T154758Z
LAST-MODIFIED:20180428T154758Z
UID:89374-1533168000-1533513599@patientworthy.com
SUMMARY:Kids Get Arthritis Too’s 2018 JA Conference
DESCRIPTION:A patient and family conference for patients and families affected by juvenile arthritis. \nNurses\, caregivers\, or other health professionals are also encouraged to attend. \nLearn more information about facing juvenile idiopathic arthritis on a daily basis\, build community\, share your stories\, and learn the latest in treatment and disease research. \nRegistration\nEarly Bird (until 4/30)\nFamily rate (up to 4 people): $250\nAdditional family member: $25\nIndividuals: $150\nAfter 4/30\nFamily rate (up to 4 people): $350\nAdditional family member: $35\nIndividuals: $200
URL:https://patientworthy.com/event/kids-get-arthritis-toos-2018-ja-conference-2/
LOCATION:Grand Hyatt Washington\, 1000 H St NW\, Washington\, DC\, United States
CATEGORIES:Juvenile Idiopathic Arthritis,Rare Disease
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