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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180906
DTEND;VALUE=DATE:20180910
DTSTAMP:20261111T134628
CREATED:20180427T194941Z
LAST-MODIFIED:20180427T194941Z
UID:89316-1536192000-1536537599@patientworthy.com
SUMMARY:The Myositis Association's Annual Patient Conference
DESCRIPTION:The 2018 Annual Patient Conference\n  \nThis conference will be an opportunity for patients\, their families\, and caregivers to learn the latest in research for various forms of myositis\, such as dermatomyositis and inclusion body myositis. \n\n 
URL:https://patientworthy.com/event/the-myositis-associations-annual-patient-conference/
LOCATION:Marriott Louisville Downtown\, 280 W Jefferson St\, Louisville\, KY\, United States
CATEGORIES:Body Inclusion Myositis,Dermatomyositis,Rare Disease
ORGANIZER;CN="The%20Myositis%20Association":MAILTO:TMA@myositis.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20180907
DTEND;VALUE=DATE:20180910
DTSTAMP:20261111T134628
CREATED:20180427T201815Z
LAST-MODIFIED:20180427T201815Z
UID:89321-1536278400-1536537599@patientworthy.com
SUMMARY:The Coffin-Siris Syndrome Foundation's Conference 2018
DESCRIPTION:  \nThis patient conference will be a chance for patient families affected by Coffin-Siris syndrome to come together to learn more about the disorder. In addition attendees will be able to network\, share stories\, build community\, and just have fun with each other. \nTo learn more about this event\, email coffinsiris@gmail.com.\n 
URL:https://patientworthy.com/event/coffin-siris-syndrome-foundations-conference-2018/
LOCATION:KY
CATEGORIES:Coffin-Siris Syndrome,Rare Disease
ORGANIZER;CN="Coffin-Siris%20Syndrome%20Foundation":MAILTO:coffinsiris@gmail.com
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180908T090000
DTEND;TZID=America/New_York:20180908T120000
DTSTAMP:20261111T134628
CREATED:20180907T144627Z
LAST-MODIFIED:20180907T145412Z
UID:100836-1536397200-1536408000@patientworthy.com
SUMMARY:Seattle Histio Patient & Family Regional Meeting
DESCRIPTION:Patients and families registration for the Seattle Histio Patient & Family Regional Meeting is free!\nCheck out this informative meeting that includes a networking lunch!
URL:https://patientworthy.com/event/seattle-histio-patient-family-regional-meeting/
LOCATION:Fred Hutchinson Cancer Research Center\, 1100 Fairview Avenue North\, Seattle\, WA\, United States
CATEGORIES:Hemophagocytic lymphohistiocytosis (HLH)
ORGANIZER;CN="Histiocytosis%20Association":MAILTO:info@histio.org
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